Huntington's disease predictive resting: The case for an assessment approach to requests from adolescents
Huntington's disease predictive resting: The case for an assessment approach to requests from adolescents
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DOI：
10.1136/jmg.33.11.912
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发表时间：
1996-11-01
影响因子：
4
通讯作者：
Harper, PS
中科院分区：
文献类型：
--
作者：
Binedell, J;Soldan, JR;Harper, PS
主动要求进行亨廷顿预测性测试的青少年雅阁给提供测试的人带来了一个两难的境地。由于缺乏关于基因检测对矿工影响的经验证据，基于不伤害和尊重个人自主和保密的道德原则，目前的政策和准则一般不允许对矿工进行检测。有人认为，坚持以年龄为基础的排除标准，在亨廷顿的疾病预测测试协议是不同步的趋势，在UR判例法有关未成年人同意医疗。此外，从发展心理学和研究青少年的决策能力的贡献表明，青少年可以作出明智的选择，他们的健康和个人生活，标准制定一个评估方法，这样的请求提出和影响的个案评估能力同意临床医生的容忍度不确定性进行了讨论。
Adolescents who are actively requesting Huntington's predictive testing of their own accord pose a dilemma to those providing testing. In the absence of empirical evidence as regards the impact of genetic testing on miners, current policy and guidelines, based on the ethical principles of non-maleficence and respect for individual autonomy and confidentiality, generally exclude the testing of miners. It is argued that adherence to an age based exclusion criterion in Huntington's disease predictive testing protocols is out of step with trends in UR case law concerning minors' consent to medical treatment. Furthermore, contributions from developmental psychology and research into adolescents' decision making competence suggest that adolescents can make informed choices about their health and personal lives, Criteria for developing an assessment approach to such requests are put forward and the implications of a case by case evaluation of competence to consent in terms of clinicians' tolerance for uncertainty are discussed.