Caregiver Burden and Associated Factors Among Informal Caregivers of Stroke Survivors
Caregiver Burden and Associated Factors Among Informal Caregivers of Stroke Survivors
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DOI：
10.1097/jnn.0000000000000552
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发表时间：
2020-12-01
影响因子：
2.3
通讯作者：
Sharrief, Anjail
中科院分区：
文献类型：
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作者：
Achilike, Saviour;Beauchamp, Jennifer E. S.;Sharrief, Anjail
背景：与进展情况下的线性护理轨迹相比，中风幸存者的非正式护理通常从强度开始。中风幸存者的非正式护理人员往往对其护理角色准备不足，这可能对其健康产生不利影响。需要更深入地了解护理负担，以确定最需要干预的护理人员。本研究的目的是检查一组中风幸存者的非正式护理人员的护理负担和相关因素。方法：完成了一项针对 88 名中风幸存者非正式护理人员的横断面研究。通过 Zarit Burden 访谈确定看护者负担，通过患者健康问卷 9 测量看护者抑郁症状，通过 Barthel 指数评估中风幸存者功能障碍。使用序数逻辑回归来确定与护理人员负担相关的独立因素。结果：43 名非正式看护者 (49%) 报告看护者负担极小或没有，30 名 (34%) 报告看护者负担轻度至中度，15 名 (17%) 报告看护者负担中度至重度。中风幸存者功能障碍与非正式护理人员负担相关 (P = .0387)。患有中度至重度功能障碍的中风幸存者的非正式护理人员承担轻度至中度护理负担的几率是无功能障碍的中风幸存者的护理人员的 3.7 倍。照顾者抑郁症状的存在与照顾者负担高度相关 (P < .001)。结论：患有功能障碍的中风幸存者的照护者和出现抑郁症状的照护者可能面临更严重的照护负担。旨在减轻非正式护理人员负担的干预措施试验应考虑中风幸存者功能障碍和抑郁症状存在的潜在影响。
BACKGROUND: Informal caregiving of stroke survivors often begins with intensity compared with the linear caregiving trajectories in progressive conditions. Informal caregivers of stroke survivors are often inadequately prepared for their caregiving role, which can have detrimental effects on their well-being. A greater depth of understanding about caregiving burden is needed to identify caregivers in most need of intervention. The purpose of this study was to examine caregiver burden and associated factors among a cohort of informal caregivers of stroke survivors. METHODS: A cross-sectional study of 88 informal caregivers of stroke survivors was completed. Caregiver burden was determined with the Zarit Burden Interview, caregiver depressive symptoms were measured with the Patient Health Questionnaire-9, and stroke survivor functional disability was assessed with the Barthel Index. Ordinal logistic regression was used to identify independent factors associated with caregiver burden. RESULTS: Forty-three informal caregivers (49%) reported minimal or no caregiver burden, 30 (34%) reported mild to moderate caregiver burden, and 15 (17%) reported moderate to severe caregiver burden. Stroke survivor functional disability was associated with informal caregiver burden (P = .0387). The odds of having mild to moderate caregiver burden were 3.7 times higher for informal caregivers of stroke survivors with moderate to severe functional disability than for caregivers of stroke survivors with no functional disability. The presence of caregiver depressive symptoms was highly correlated with caregiver burden (P < .001). CONCLUSION: Caregivers of stroke survivors with functional disabilities and caregivers experiencing depressive symptoms may have severer caregiver burden. Trials of interventions aimed at decreasing informal caregiver burden should consider the potential impact of stroke survivors' functional disability and the presence of depressive symptoms.