Women's preferences for discussion of prognosis in early breast cancer.
Women's preferences for discussion of prognosis in early breast cancer.
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DOI：
10.1046/j.1369-6513.2001.00119.x
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发表时间：
2001-03-01
期刊：
影响因子：
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通讯作者：
Tattersall, M H
中科院分区：
文献类型：
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作者：
Lobb, E A;Kenny, D T;Tattersall, M H
目的：为了确定妇女与早期乳腺癌的预后信息的偏好。设计：横断面调查。参与者：100名妇女与早期乳腺癌参加六个教学医院在悉尼，澳大利亚。主要结果测量：妇女的偏好预后信息。结果：本研究确定了新的元素，考虑在预后咨询。虽然91%的女性希望在开始辅助治疗之前了解自己的预后，但63%的女性希望在给予辅助治疗之前先与癌症专家进行检查。77%的女性希望被询问是否需要第二种意见。75%的人想了解补充疗法。大多数人希望他们的癌症专家检查他们的理解，提供提问的机会，并解释医学术语（98%）。大多数人希望信息得到总结（94%），得到公开信息的支持（88%）和书面记录（79%）。97%的人希望他们的恐惧和担忧得到倾听，79%的人希望得到情感支持。此外，80%的女性希望他们的癌症专家告诉他们，他们可以去哪里为自己和家人获得额外的情感支持。72%的妇女希望他们的癌症专家，以确保他们有一个亲戚或朋友与them.Conclusions：这项研究的数据表明，需要各种技术来沟通预后。虽然承认个别妇女的喜好，并不想出现规定，建议出现与早期乳腺癌妇女的预后进行有效的讨论。
OBJECTIVES: To determine preference for prognostic information in women with early breast cancer.DESIGN: Cross sectional survey.PARTICIPANTS: 100 women with early stage breast cancer attending six teaching hospitals in Sydney, Australia.MAIN OUTCOME MEASURES: Women's preference for prognostic information.RESULTS: This study identifies new elements to consider in the prognostic consultation. Whilst 91% of women wanted to know their prognosis prior to commencing adjuvant treatment, 63% wanted their cancer specialist to check with them first before giving it. Seventy-seven percent wanted to be asked if they would like a second opinion. Seventy-five percent wanted to know about complementary therapies. Most wanted their cancer specialist to check their understanding, provide an opportunity to ask questions, and explain medical terms (98%). The majority wanted information summarized (94%), supported by published information (88%) and written down (79%). Ninety-seven percent wanted their fears and concerns listened to and 79% wanted emotional support. In addition 80% of women wanted their cancer specialist to tell them where they could go to get additional emotional support for themselves and their families. Seventy-two percent of women wanted their cancer specialist to make sure they had a relative or friend with them.CONCLUSIONS: Data from this study suggests that a variety of techniques are needed to communicate prognosis. Whilst acknowledging individual women's preferences, and not wanting to appear prescriptive, recommendations emerge for effective discussion of prognosis with women with early stage breast cancer.