Pain management in sickle cell disease
Pain management in sickle cell disease
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DOI：
10.1179/174592006x93860
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发表时间：
2006-03-01
期刊：
影响因子：
1.3
通讯作者：
Greenfield, Sheila M.
中科院分区：
文献类型：
--
作者：
Booker, Matthew J.;Blethyn, Kate L.;Greenfield, Sheila M.
目的：镰状细胞病（SCD）是一种遗传性血液病，其特征是反复发作的“危机”疼痛，这是反复入院的最常见原因。这种疼痛的性质，然而，是知之甚少，疼痛往往是次优manage.Methods：一个焦点小组格式，使用主题分析解释，被用来获得更好的理解障碍，SCD患者面临的管理他们的疼痛和他们的看法，他们从医疗保健专业人员接受的治疗。从焦点小组中出现的对参与者的疼痛管理产生不利影响的关键问题包括：因“危机”疼痛的经历而感到孤立，不被倾听，以及社会支持网络的局限性。有关寻求医疗护理的具体问题包括缺乏对SCD的非专科临床医生的理解，被低优先级的感觉，由于“无形”的性质，他们的痛苦，并感到不信任的医务人员时，寻求algina.Discussion：孤立的感觉可能会驱动适应不良的应对策略和表现在愤怒，侵略和主动避免使用服务。改善服务的建议包括以疼痛讨论小组或自助小组的形式，积极针对孤立的个人，以及提供更多专门服务。
Objectives: Sickle cell disease (SCD) is an inherited blood disorder characterized by recurrent 'crisis' pain, which is the most common reason for repeated hospital admission. The nature of this pain, however, is poorly understood, and the pain is often sub-optimally managed.Methods: A focus group format, interpreted using thematic analysis, was used to gain a greater understanding of the barriers that SCD patients face in managing their pain and their perceptions of the treatment that they receive from healthcare professionals.Results: Key issues emerging from the focus groups that adversely affected participants' pain management included: feeling isolated by their experience of 'crisis' pain, not being listened to, and limitations to social support networks. Specific issues relating to seeking medical care included lack of understanding about SCD by non-specialist clinicians, feelings of being low priority due to the 'invisible' nature of their pain, and feeling mistrusted by medical staff when seeking analgesia.Discussion: Feelings of isolation may drive maladaptive coping strategies and manifest in anger, aggression and active avoidance of service use. Suggested service improvements include the active targeting of isolated individuals in the form of pain discussion groups or self-help groups, and greater provision of specialised services.