Partnering in Research: A National Research Trial Exemplifying Effective Collaboration With American Indian Nations and the Indian Health Service
Partnering in Research: A National Research Trial Exemplifying Effective Collaboration With American Indian Nations and the Indian Health Service
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DOI：
10.1093/aje/kwu246
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发表时间：
2014-12-15
影响因子：
5
通讯作者：
Payan, Marisa L.
中科院分区：
文献类型：
--
作者：
Chadwick, Jennifer Q.;Copeland, Kenneth C.;Payan, Marisa L.
尽管许多重大公共卫生问题几代人以来一直困扰着美国印第安人社区，但在美国许多地区，美国印第安人传统上参与健康研究的情况一直是零星的。2002年，俄克拉荷马大学健康科学中心(俄克拉荷马城，俄克拉荷马市)和5个俄克拉荷马美国印第安人研究审查委员会(俄克拉荷马市地区印第安人健康服务、缺席的肖尼部落、切诺基民族、契卡索民族和乔克托民族)同意集体参加一项全国性的研究试验，即青春期和青年2型糖尿病的治疗选择(今天)研究。在这一过程中，吸取了许多经验教训，制定了加强伙伴关系和促进研究的进程。正式协议备忘录涉及社区合作、地点、部落权力机构、优先雇用美国印第安人和赔偿等问题。这些协议有助于联合主权国家、印度卫生服务机构、学者和公共卫生官员进行负责任和合乎道德的研究。10多年来，这一独特的伙伴关系通过预览所有研究出版物和当地机构审查委员会对所有程序的审查，在招募和留住美国印第安人参与者、尊重文化差异和维持部落自治方面发挥了有效作用。吸取的经验教训可能对未来与美国印第安人社区进行研究的调查人员有价值。
Despite the fact that numerous major public health problems have plagued American Indian communities for generations, American Indian participation in health research traditionally has been sporadic in many parts of the United States. In 2002, the University of Oklahoma Health Sciences Center (Oklahoma City, Oklahoma) and 5 Oklahoma American Indian research review boards (Oklahoma City Area Indian Health Service, Absentee Shawnee Tribe, Cherokee Nation, Chickasaw Nation, and Choctaw Nation) agreed to participate collectively in a national research trial, the Treatment Options for Type 2 Diabetes in Adolescence and Youth (TODAY) Study. During that process, numerous lessons were learned and processes developed that strengthened the partnerships and facilitated the research. Formal Memoranda of Agreement addressed issues related to community collaboration, venue, tribal authority, preferential hiring of American Indians, and indemnification. The agreements aided in uniting sovereign nations, the Indian Health Service, academics, and public health officials to conduct responsible and ethical research. For more than 10 years, this unique partnership has functioned effectively in recruiting and retaining American Indian participants, respecting cultural differences, and maintaining tribal autonomy through prereview of all study publications and local institutional review board review of all processes. The lessons learned may be of value to investigators conducting future research with American Indian communities.