Exploring attitudes and preferences for dementia screening in Britain: contributions from carers and the general public.
Exploring attitudes and preferences for dementia screening in Britain: contributions from carers and the general public.
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DOI：
10.1186/s12877-015-0100-6
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发表时间：
2015-09-09
期刊：
影响因子：
4.1
通讯作者：
Lafortune L
中科院分区：
文献类型：
--
作者：
Martin S;Fleming J;Cullum S;Dening T;Rait G;Fox C;Katona C;Brayne C;Lafortune L
痴呆症正在成为一代人中最重要的新兴公共卫生问题之一。在减轻重大疾病“负担”的社会方法中，人群筛查有时可以提供一种有效的方法来改善疾病的检测和结果。然而，对于英国公众来说，系统的痴呆症人群筛查计划的可接受性尚不清楚。一个病人和公众参与（PPI）的活动，让来自英格兰东部的公众有机会提供他们的观点和评论的结果，系统的文献综述，看看对痴呆症筛查的态度和偏好。36名公众和8名国家阿尔茨海默氏症社会研究网络志愿者参加了这次活动。上午的讨论包含一个演示文稿，其中定义了与会者的人群筛选，但没有提到审查的结果。下午，介绍了审查结果，并促进了对审查结果的讨论。对讨论进行了记录、转录和专题分析。NVivo定性数据软件用于促进这一过程。总共出现了23个与护理人员和一般人群相关的关键主题。最常见的主题是对痴呆综合征的理解和认识水平低;任何测试的可接受性和有效性;国家卫生服务（NHS）的成本;个人现有的健康状况;筛查的经济/利润动机;无法改变预后;以及支持的重要性和可用性。个人信仰、经历和对健康的态度等因素会影响痴呆症筛查的决定。提出了一些先前在系统性文献综述中未发现的其他问题。这些问题围绕着筛查的经济激励（利润动机）、提供社会支持以及筛查方案的经济/社会影响。这可能反映了英国和其他先前进行研究的国家之间在卫生和社会保健资助模式方面的文化差异。本文的在线版本（doi：10.1186/s12877-015-0100-6）包含补充材料，可供授权用户使用。
Dementia is becoming one of the most important emerging public health concerns in a generation. In societal approaches to the mitigation of major disease ‘burden’, population screening can sometimes provide an effective approach to improving detection of disease and outcomes. However the acceptability of a systematic population screening programme for dementia, to the British public, is not known. A Patient and Public Involvement (PPI) event was organised to give members of the public from the East of England an opportunity to offer their perspectives and to comment on the findings of a systematic literature review looking at attitudes and preferences towards screening for dementia. The event was attended by 36 members of the public and eight national Alzheimer’s Society Research Network volunteers. The morning discussion contained a presentation, which defined population screening for attendees but contained no reference to the findings of the review. In the afternoon, findings of the review were presented and a discussion on the results was facilitated. The discussions were recorded, transcribed and subjected to thematic analysis. The NVivo qualitative data software was used to facilitate this process. A total of 23 key themes emerged in relation to the carer and general population. The most frequent themes which emerged were the low levels of understanding and awareness around the dementia syndrome; the acceptability and validity of any tests; costs to the National Health Service (NHS); an individual’s existing health status existing health status; financial/profit motive for screening; the inability to change prognosis; and the importance and availability of support. Factors such as personal beliefs, experiences and attitudes to health impact on decisions to be screened for dementia. A number of additional concerns were raised which were not previously identified in the systematic literature review. These were around the economic incentives for screening (profit motive), the provision of social support, and the economic/social impacts of screening programmes. This may reflect cultural differences in health and social care funding models between Britain and other countries where previous research was conducted. The online version of this article (doi:10.1186/s12877-015-0100-6) contains supplementary material, which is available to authorized users.