A survey of Australian clinical registries: can quality of care be measured?
A survey of Australian clinical registries: can quality of care be measured?
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DOI：
10.1111/j.1445-5994.2009.02068.x
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发表时间：
2011-01-01
影响因子：
2.1
通讯作者：
McNeil, J.
中科院分区：
文献类型：
--
作者：
Evans, S. M.;Bohensky, M.;McNeil, J.
背景：临床质量登记处收集和分析信息，以监测和提高患者接受的护理质量。本研究的目的是确定澳大利亚临床登记的属性，以确定其准确评估护理质量的能力。方法：对管理多地点临床结果登记的登记管理员进行调查。它们被要求就登记处的一般方面自我报告，包括覆盖范围、运作时间、数据收集过程、数据管理、数据质量和登记处治理结构。结果：总共确定了28个登记处，所有登记处都对调查作出了答复。为了提供有用和可靠的信息，以提高质量，大多数注册中心需要修改其程序。13个注册中心（46%）没有评估或招募少于80%的符合条件的人群，23个注册中心（82%）没有正式审核临床水平编码的可靠性。5个（18%）没有收集结果测量的基本风险调整所需的信息。虽然大多数注册中心为提供者和有关各方编写了报告，但传播这些信息的方法却千差万别。结论：临床登记提供了关于护理质量的最可信的信息。然而，为了完成这项任务，澳大利亚的大多数关键登记处需要对程序进行一些调整。应当提供资金，使登记处能够作出必要的改变。
Background: Clinical quality registries gather and analyse information to monitor and enhance the quality of care received by patients. The aim of the present study was to determine the attributes of Australian clinical registries to identify their capacity to accurately assess quality of care.Methods: A survey was distributed to registry custodians managing multi-site clinical outcome registries. They were asked to self-report on general aspects of registries, including coverage, length of operation, data collection process, data management, quality of data and registry governance structures.Results: A total of 28 registries were identified and all provided responses to the survey. The majority of the registries require modifications to their procedures in order to provide useful and reliable information for quality improvement purposes. Thirteen registries (46%) did not assess or recruited fewer than 80% of the eligible population and 23 (82%) did not formally audit reliability of coding at the clinical level. Five (18%) did not collect the information required for basic risk adjustment of outcome measures. While most registries produced reports for providers and interested parties, the approach to disseminating this information was highly variable.Conclusion: Clinical registries provide the most credible information about quality of care. However, most key registries in Australia require some adaptation of procedures in order to accomplish this task. Funding should be provided to enable registries to make the necessary changes.