Assessing the health, functional characteristics, and health needs of youth attending a noncategorical transition support program.
Assessing the health, functional characteristics, and health needs of youth attending a noncategorical transition support program.
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评估参加非分类过渡支持计划的青少年的健康、功能特征和健康需求。
DOI：
10.1016/j.jadohealth.2011.12.016
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发表时间：
2012
期刊：
影响因子：
--
通讯作者：
Ciccarelli,MaryR
中科院分区：
文献类型：
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作者：
Woodward,JasonF;Swigonski,NancyL;Ciccarelli,MaryR
评估健康，功能特点，和健康护理服务需求的青年和年轻的成年人参加一个全面的，非分类的过渡program.METHODSA自我管理的调查是从国家健康调查和临床经验，以评估成功过渡到成年的重要概念确定的特殊卫生保健需求。调查邮寄给198名有特殊卫生保健需要的青少年和年轻人的父母参加过渡诊所。父母被问及青少年的健康，功能状态和所需的医疗保健服务。临床数据库提供人口统计学和患者健康特征。结果与2005-2006年全国有特殊卫生保健需求儿童调查进行了比较。平均年龄为17.5岁（11-22岁），诊断包括脑瘫（36%），脊柱裂（10%），发育迟缓或唐氏综合征（17%）和自闭症（6%）。大多数青少年在个人护理（69%）和日常需求（91%）方面需要帮助，并使用辅助设备（59%）。与2005-2006年全国有特殊保健需求儿童调查相比，父母报告对除精神保健和烟草或药物使用咨询以外的所有服务的需求都更高。43%的人报告至少有一个未满足的健康需求。很少有家长报告需要咨询的物质使用（1%），性健康筛查（16%），营养（34%），和运动（41%）。CONCLUSIONSYouth参加我们的过渡计划有更多的功能限制，较差的健康状况，不同的诊断分布，和更高水平的所需的卫生服务。很少有家长认为需要其他建议的青少年预防服务。过渡计划应评估病人的健康特征和服务需求，以设计有效的以病人为中心的服务。
PURPOSETo assess the health, functional characteristics, and health care service needs of youth and young adults with special health care needs attending a comprehensive, noncategorical transition program.METHODSA self-administered survey was developed from national health surveys and clinical experience to assess concepts identified as important for successful transition to adulthood. Surveys were mailed to 198 parents of youth and young adults with special health care needs attending the transition clinic. Parents were asked about the youth's health, functional status, and health care services needed. The clinical database provided demographic and patient health characteristics. Results were compared against the 2005–2006 National Survey of Children with Special Health Care Needs.RESULTSForty-four percent of surveys were returned. Average age of youth was 17.5 (11–22) years old and diagnoses included cerebral palsy (36%), spina bifida (10%), developmental delay or Down syndrome (17%), and autism (6%). Most youth needed assistance with personal care (69%) and routine needs (91%) and used assistive devices (59%). Compared with the 2005–2006 National Survey of Children with Special Health Care Needs, parents reported higher needs for all services except mental health care and tobacco or substance use counseling. Forty three percent reported at least one unmet health need. Few parents reported the need for counseling on substance use (1%), sexual health screening (16%), nutrition (34%), and exercise (41%).CONCLUSIONSYouth attending our transition program had more functional limitations, poorer reported health status, different diagnosis distribution, and higher levels of needed health services. Few parents identified needs for other recommended adolescent preventive services. Transition programs should assess patient health characteristics and service needs to design effective patient-centered services.