Parents of deaf children seeking hearing loss-related information on the internet: The Australian experience
Parents of deaf children seeking hearing loss-related information on the internet: The Australian experience
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DOI：
10.1093/deafed/enm009
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发表时间：
2007-09-01
影响因子：
2
通讯作者：
Edirippulige, Sisira
中科院分区：
文献类型：
--
作者：
Porter, Ann;Edirippulige, Sisira
孩子在婴儿筛查项目中被确诊的父母，被要求在他们情绪脆弱的时候，在听力损失的管理上做出一些艰难的选择。他们被要求评估有关听力障碍技术、沟通选择、教育和康复等问题的信息和结果。万维网已经成为健康消费者和从业者的重要健康信息来源。快速、方便和私下在线获取准确的健康信息的能力为做出明智的决定提供了机会。然而，人们对利用互联网获取健康信息的程度知之甚少，特别是在聋儿父母寻求信息的情况下。这项研究证实，在互联网上搜索健康信息主要是由母亲进行的。在澳大利亚的情况下，除了早期干预之外，家庭可以获得的在线信息很少。关于教育问题、精神健康和耳聋或听力损失儿童或青少年的日常管理的信息在网站上被忽视了。这项研究还显示，大多数受访者从未访问过HealthInsite或Medline Plus，这两个网站是提供可靠消费者健康信息的门户网站，尽管这些网站上的信息性质更一般，不太可能帮助父母在沟通选择或教育等复杂问题上做出知情选择。然而，研究表明，有一半的父母曾与他们的医生或听力专家谈论过他们在互联网上找到的信息，这是一个令人鼓舞的趋势。
Parents whose children are diagnosed in an infant screening program are required to make some difficult choices about the management of the hearing loss at a time when they are emotionally vulnerable. They are required to evaluate information and outcomes regarding issues such as technology for hearing impairment, communication options, education, and rehabilitation. The World Wide Web has become an important resource of health information for both health consumers and practitioners. The ability to obtain accurate health information online quickly, conveniently, and privately provides opportunity to make informed decisions. However, little is known about the level of the use of the Internet to acquire health information, particularly in the case of parents of deaf children seeking information. This study confirms that searches for health information on the Internet are conducted primarily by mothers. In the Australian context, there is minimal online information available to families beyond early intervention. Information on education issues, mental health, and deafness or the day-to-day management of a child or adolescent with a hearing loss are neglected topics on Web sites. This study also revealed that the majority of respondents had never visited HealthInsite or Medline Plus, two gateway sites for reliable consumer health information, although the information on these sites is more generic in nature and unlikely to assist parents to make informed choices on complex issues such as communication options or education. However, the study suggested that half the parents have talked to their doctor or hearing professional about information they found on the Internet, which is an encouraging tendency.