HOPE IN THE FAMILY CAREGIVER OF TERMINALLY ILL PEOPLE

HOPE IN THE FAMILY CAREGIVER OF TERMINALLY ILL PEOPLE
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DOI:
10.1046/j.1365-2648.1993.18040538.x
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发表时间:
1993-04-01
影响因子:
3.8
通讯作者:
HERTH, K
HERTH, K
中科院分区:
医学3区
文献类型:
--
作者:
HERTH, K

文献摘要

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本纵向研究探讨希望的意义、特定背景特征对希望的影响,并利用方位法三角测量技术(访谈、赫斯希望指数和背景数据表),选取来自两个安宁疗护计划的25名末期病人家属照护者作为方便样本,找出培养希望的策略。希望被定义为一种动态的内在力量,它使人们能够超越现状,并培养一种积极的新意识。根据访谈的回应,确定了六个希望培育类别和三个希望阻碍类别。除了那些照顾被诊断患有艾滋病的家庭成员的人,以及那些个人健康状况不佳、高度疲劳、严重睡眠不足和同时失去两种以上的照顾者之外,参与者的总体希望水平在所有背景变量中都保持稳定。随着时间的推移,希望水平在第一次面试时较低,在第二次面试时显著上升,然后在剩下的时间里趋于平稳。从家庭照顾者的角度理解希望,可以为制定促进希望的干预措施提供基础。
This longitudinal study explored the meaning of hope, the influence of specific background characteristics on hope, and identified strategies that are used to foster hope in a convenience sample of 25 family caregivers of terminally ill family members from two hospice programmes using the technique of methodological triangulation (interview, Herth Hope Index and Background Data Form). Hope was defined as a dynamic inner power that enables transcendence of the present situation and fosters a positive new awareness of being. Six hope-fostering categories and three hope-hindering categories were identified based on the interview responses. With the exception of those providing care to a family member diagnosed with AIDS and those caregivers experiencing poor personal health, a high fatigue level, severe sleep deprivation and more than two concurrent losses, overall hope levels among participants were found to remain stable across the background variables. Across time, hope levels were found to be low at interview time one, rise significantly by time two and then level off for the remainder of the time. An understanding of hope from the perspective of the family caregiver could provide a basis upon which to develop interventions that foster hope.