Contested Histories and Happiness: Leprosy literature in Japan

Contested Histories and Happiness: Leprosy literature in Japan
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有争议的历史与幸福:日本的麻风病文学

DOI:
10.5195/hcs.2013.133
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发表时间:
2013
期刊:
Health, Culture and Society
影响因子:
--
通讯作者:
K. Tanaka
K. Tanaka
中科院分区:
--
文献类型:
--
作者:
K. Tanaka

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在20世纪初,日本政府通过了一系列针对麻风病患者的法律。结果,许多病人在公共麻风场所被隔离,往往是终身隔离。为了应对一种严重耻辱的疾病的诊断和一生的隔离,患者开始写信。麻风病患者的作品非常受欢迎,到20世纪30年代中期,他们的作品被称为一种独特的文学类型,“麻风病文学”。对麻风病文献的研究集中在其对侵犯人权、与疾病作斗争以及隔离生活困难的描述上。然而,20世纪30年代病人的写作也揭示了病人在医院里找到幸福的多种方式。从这个意义上说,麻风文学也是一个翻译的场所,揭示了医院和医疗当局、患者、麻风救助团体和政府政策之间的医院生活谈判。根据他们对疾病和在麻风岛生活的看法,麻风岛居民以多种方式代表幸福。对一些病人来说,医院本身就是幸福的源泉,因为他们的疾病被污名化,以至于医院外的生活变得难以忍受。其他作家对医院的生活感到恼火;在他们的作品中,幸福的翻译是一个更复杂的过程。本文以这些不同的翻译过程为出发点,探讨了患者在医院生活范围内设想健康和幸福的多种方式。
At the turn of the twentieth century, the Japanese government passed a series of laws targeting people diagnosed with Hansen’s Disease (leprosy). As a result, many patients were quarantined in public leprosaria, often for life. In order to cope with both the diagnosis of a heavily stigmatized illness and a lifetime in isolation, patients began to write. The works produced by sufferers became so popular that by the mid-1930s their writing was referred to as a distinct literary genre, “leprosy literature.” Studies of leprosy literature have focused on its depiction of human rights violations, struggles with the illness, and the difficulty of life in quarantine. However, patient writing in the 1930s also reveals the multiple ways in which patients found happiness within the institution. In this sense, leprosy literature is also a site of translation, revealing the negotiations of hospital life involving hospital and medical authorities, patients, leprosy relief groups, and government policies. Residents of the leprosaria represent happiness in multiple ways depending on their conception of their illness and life in the leprosaria. For some patients, the institution itself was a source of happiness in that their illness was stigmatized to the degree that life outside the hospital became unbearable. Other writers chafed at life in the hospital; the translation of happiness in their writing is a more complex process. This paper takes these diverse processes of translation as its starting point and examines the multiple ways in which patients conceived of health and happiness within the confines of hospital life.
DOI: 10.1111/j.1468-4446.2009.01247.x
发表时间: 1992-06
期刊: The British journal of sociology
影响因子: --
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