Development of a Web-Based Decision Aid and Planning Tool for Family Building After Cancer (Roadmap to Parenthood): Usability Testing.
Development of a Web-Based Decision Aid and Planning Tool for Family Building After Cancer (Roadmap to Parenthood): Usability Testing.
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由于性腺毒性癌症治疗，年轻成年女性幸存者经常报告其生育能力，生殖潜力和治疗后的家庭建设选择的不确定性。父母路线图是一个基于网络的决策援助和规划工具，用于癌症后的家庭建设。作为以患者为中心的开发过程的一部分，本研究评估了决策辅助网站的可用性，以告知设计修改和改善用户体验。总共对年轻成年女性癌症幸存者目标人群进行了2轮可用性测试。在测试过程中，参与者浏览了两次网站;第一次，作为一种大声思考的练习，第二次，研究人员在关键点打断以获得用户反馈。收集了定量和定性数据，以评估网站的可用性。定量测量包括系统可用性量表、WebQual和电子健康影响问卷。一个带有开放式问题的离职面谈收集了关于喜欢和不喜欢的反馈以及改进建议。参与者（N=10）为年轻成年女性，平均年龄为30.9（SD 4.51）岁，治疗后平均时间为4.44（SD 3.56）年。在根据用户反馈进行设计更改后，网站可用性在系统可用性量表上的得分从第一轮的“可接受”提高到第二轮的“优秀”（得分分别为68和89.4）。WebQual评分从第1轮到第2轮测试显示出类似的改善（平均5.6至6.25;范围1-7）。在电子健康影响问卷调查中，网站的信息和介绍被认为是全面的，易于理解的，值得信赖的。与会者还报告说，讨论和管理生育率和家庭建设问题的信心有所提高，并感到受到鼓舞，在管理生育率方面发挥更积极的作用。总之，从定性反馈中确定了3个可用性主题：易用性、可见性和导航以及信息内容和有用性。总体反馈是积极的，参与者报告说，打算在未来使用决策辅助网站。总的来说，10%（1/10）的参与者在了解不孕风险和潜在的家庭建设挑战时报告了负面情绪。根据用户反馈意见修改设计后，网站的可用性得到改善。年轻的成年女性幸存者报告了对该网站的积极看法，并表示决策援助将有助于癌症后家庭建设的决策。未来的研究将包括进一步的设计修改，以考虑用户的情感体验和任何额外的导航功能或内容，以优化该工具提供的易用性和支持。
Owing to gonadotoxic cancer treatments, young adult female survivors often report uncertainty about their fertility, reproductive potential, and family-building options after treatment. Roadmap to Parenthood is a web-based decision aid and planning tool for family building after cancer. As part of a patient-centered development process, this study evaluated the usability of the decision aid website to inform design modifications and improve user experience. In total, 2 rounds of usability testing were conducted with the target population of young adult female cancer survivors. During the testing sessions, participants viewed the website twice; first, as a think-aloud exercise, and second, while a researcher interrupted at key points to obtain user feedback. Quantitative and qualitative data were collected to assess website usability. Quantitative measures included the System Usability Scale, WebQual, and eHealth Impact Questionnaire. An exit interview with open-ended questions gathered feedback on likes and dislikes and suggestions for improvement. Participants (N=10) were young adult women, with average age of 30.9 (SD 4.51) years, and average time since treatment was 4.44 (SD 3.56) years. Website usability scores improved on the System Usability Scale from “acceptable” in round 1 to “excellent” in round 2 after making design changes based on user feedback (scores of 68 and 89.4, respectively). WebQual scores showed similar improvement from round 1 to round 2 of testing (mean 5.6 to 6.25; range 1-7). On the eHealth Impact Questionnaire, the information and presentation of the website was perceived as comprehensive, easy to understand, and trustworthy. Participants also reported improved confidence to discuss and manage fertility and family-building issues and felt encouraged to play a more active role in managing their fertility. In all, 3 usability themes were identified from the qualitative feedback: ease of use, visibility and navigation, and informational content and usefulness. Overall feedback was positive, and participants reported intentions to use the decision aid website in the future. In total, 10% (1/10) of the participants reported negative emotions when learning about infertility risks and potential family-building challenges. Website usability improved after design changes were made in response to user feedback. Young adult female survivors reported positive views about the website and indicated that the decision aid would be useful in decision-making about family building after cancer. Future studies will include further design modifications to consider the emotional experiences of users and any additional navigational features or content to optimize the ease of use and support provided by the tool.
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影响因子：
2.7
作者：
Dauber-Decker KL;Basile M;King D;Polo J;Calise K;Khan S;Solomon J;Dunne D;Hajizadeh N
通讯作者：
Hajizadeh N
影响因子：
3.1
作者：
Armuand, Gabriela M.;Wettergren, Lena;Lampic, Claudia
通讯作者：
Lampic, Claudia
影响因子：
2.9
作者：
Benedict, Catherine;Ford, Jennifer S.;Diefenbach, Michael
通讯作者：
Diefenbach, Michael
影响因子：
3.1
作者：
Benedict, Catherine;Hahn, Alexandria L.;Ford, Jennifer S.
通讯作者：
Ford, Jennifer S.
影响因子：
1.3
作者：
Alejos, David;Tregubenko, Polina;Kumar, Abhishek
通讯作者：
Kumar, Abhishek