What Do People Really Know and Think About Clinical Trials? A Comparison of Rural and Urban Communities in the South
What Do People Really Know and Think About Clinical Trials? A Comparison of Rural and Urban Communities in the South
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DOI：
10.1007/s10900-013-9659-z
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发表时间：
2013-08-01
影响因子：
5.9
通讯作者：
Kim, Sei-Hill
中科院分区：
文献类型：
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作者：
Friedman, Daniela B.;Bergeron, Caroline D.;Kim, Sei-Hill
临床试验 (CT) 有可能提供最先进的医疗治疗和筛查方案，并帮助医疗服务不足的个人（包括农村社区的个人）获得所需的医疗护理。尽管需要获得护理，但农村社区的 CT 参与率仍然很低。这项研究调查了东南部州农村和城市社区的个人对 CT 的了解和看法。在全州范围内对 212 名男性和女性进行了 19 个焦点小组和 8 次访谈。讨论评估了参与者关于 CT 的信念、看法和信息来源，以及他们参与 CT 的意愿。对焦点小组和访谈记录进行主题定性分析。城市和农村参与者对 CT 表达了相似的看法。常见的误解是 CT 是为无力承担护理费用的人准备的，完成调查或参加焦点小组就构成 CT。农村居民认为CT中的欺骗行为比城市居民更频繁，并且他们未来参加CT的意愿也低于城市居民。城市居民更频繁地将他们对医疗系统的不信任作为不想参与的理由。许多人表示，他们的参与将取决于医生是否建议或试验是否有益于家庭成员的健康。研究结果对健康传播具有重要意义。应制定信息来消除农村和城市社区的误解，并传达 CT 参与对促进和保护社区健康的重要性。
Clinical trials (CTs) have the potential to provide the most advanced medical treatments and screening options and help medically underserved individuals, including those in rural communities, obtain the medical care they need. Despite the need for access to care, CT participation remains low in rural communities. This study examined what individuals in both rural and urban communities of a Southeastern state know and think about CTs. Nineteen focus groups and eight interviews were conducted statewide with a total of 212 men and women. Discussions assessed participants' beliefs, perceptions, and sources of information about CTs, and their willingness to participate in a CT. Focus group and interview transcripts were analyzed qualitatively for themes. Urban and rural participants expressed similar beliefs about CTs. Common misperceptions were that CTs were intended for people who could not afford care and that completing a survey or participating in a focus group constituted a CT. Rural residents believed that CTs involved deception more often than urban residents, and they were less willing than urban residents to participate in a CT in the future. Urban residents more frequently discussed their distrust of the medical system as a reason for not wanting to participate. Many individuals expressed that their participation would depend on whether their doctor recommended it or whether the trial would benefit a family member's health. Findings have important implications for health communication. Messages should be developed to address misperceptions of rural and urban communities and convey the importance of CT participation to promote and protect the health of their communities.