A model of delivering multi-disciplinary care to people with 46 XY DSD
A model of delivering multi-disciplinary care to people with 46 XY DSD
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DOI：
10.1016/j.jpurol.2011.08.013
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发表时间：
2012-02-01
影响因子：
2
通讯作者：
Kropp, Bradley P.
中科院分区：
文献类型：
--
作者：
Palmer, Blake W.;Wisniewski, Amy B.;Kropp, Bradley P.
2006年，Lawson Wilkins儿科内分泌学会（LWPES）和欧洲儿科内分泌学会（ESPE）联合发表了关于性发育障碍（DSD）管理的共识声明[1]。该共识提供的建议是，对受DSD影响的人的评估和长期护理应在具有此类条件经验的多学科团队的医疗中心进行。在这里，我们提供了我们的团队对2006年共识声明建议的解释，并将其翻译成一个临床协议，用于受46 XY DSD影响的个体，无论是女性，还是模棱两可的，出生时的生殖器。医疗和手术管理的选择，过渡的护理，并使用心理健康服务和同伴支持小组进行了讨论。最后，我们提供了初步的数据，以支持我们的模型提供多学科的护理和支持病人及其家属的应用。(C)2011年儿科泌尿学杂志公司。由爱思唯尔有限公司出版。保留所有权利。
In 2006, a consensus statement was jointly produced by the Lawson Wilkins Pediatric Endocrine Society (LWPES) and the European Society of Paediatric Endocrinology (ESPE) concerning the management of disorders of sex development (DSD) [1]. A recommendation provided by this consensus was that evaluation and long-term care for people affected by DSD should be performed at medical centers with multi-disciplinary teams experienced in such conditions. Here we provide our team's interpretation of the 2006 consensus statement recommendations and its translation into a clinical protocol for individuals affected by 46 XY DSD with either female, or ambiguous, genitalia at birth. Options for medical and surgical management, transitioning of care, and the use of mental health services and peer support groups are discussed. Finally, we provide preliminary data to support the application of our model for delivering multi-disciplinary care and support to patients and their families. (C) 2011 Journal of Pediatric Urology Company. Published by Elsevier Ltd. All rights reserved.