Paid carers' experiences of caring for mechanically ventilated children at home: Implications for services and training
Paid carers' experiences of caring for mechanically ventilated children at home: Implications for services and training
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DOI：
10.1177/1367493512456113
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发表时间：
2013-06-01
影响因子：
1.9
通讯作者：
Pontin, David
中科院分区：
文献类型：
--
作者：
Maddox, Christina;Pontin, David
英国长期机械通气儿童的存活率有所提高，付费护理人员接受了在家护理儿童的培训，但有关护理人员培训需求和分担护理经验的文献有限。使用定性溯因设计，我们有目的地对经验丰富的护理人员进行抽样，通过日记、半结构化访谈和研究人员反思笔记生成数据。研究伦理获得了 NHS 和大学委员会的批准。出现了五个分析主题：家长作为专家；角色定义的紧张；培训和继续学习需求；复杂的情绪；支持机制强调在家庭护理人员中工作的挑战及其相关的学习需求。建议进一步努力让照顾者做好与父母分享感受的准备，使用预防倦怠的技巧，并建立信心。护理人员强调夜间工作期间缺乏临床监督。一种解决方案可能是在非办公时间工作时提供注册护士支持。
UK survival rates for long-term mechanically ventilated children have increased and paid carers are trained to care for them at home, however there is limited literature on carers' training needs and experience of sharing care. Using a qualitative abductive design, we purposively sampled experienced carers to generate data via diaries, semi-structured interviews, and researcher reflexive notes. Research ethics approval was granted from NHS and University committees. Five analytical themes emerged - Parent as expert; Role definition tensions; Training and Continuing Learning Needs; Mixed Emotions; Support Mechanisms highlighting the challenges of working in family homes for carers and their associated learning needs. Further work on preparing carers to share feelings with parents, using burnout prevention techniques, and building confidence is suggested. Carers highlight the lack of clinical supervision during their night-working hours. One solution may be to provide access to registered nurse support when working out-of-office hours.