Experiences of adolescents with Cystic Fibrosis during their transition from paediatric to adult health care: a qualitative study of young Australian adults
Experiences of adolescents with Cystic Fibrosis during their transition from paediatric to adult health care: a qualitative study of young Australian adults
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DOI：
10.1080/09638280310001644924
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发表时间：
2004-02-18
影响因子：
2.2
通讯作者：
Lansbury, G
中科院分区：
文献类型：
--
作者：
Brumfield, K;Lansbury, G
目的：探讨澳大利亚青少年囊性纤维化（CF）的经验，因为他们从儿科到成人护理的过渡。从两种类型的护理，儿科和成人，过渡计划的元素（如果可用）和可能影响过渡的心理社会因素的角度来研究这种经常创伤性的护理变化。（19-34岁），请他们描述他们在过渡时期的经历。对转录访谈的专题分析表明，影响参与者过渡经历的四个主要领域是儿科和成人保健、过渡方案所包含的要素和心理社会因素。患者与儿科医生的关系，医生对过渡的态度和提供适合年龄的护理似乎会影响青少年的经验，因为他们改变了成人护理。过渡方案的成功要素，如果提供的话，是指导图尔斯、提供信息和在成人诊所有一张熟悉的面孔。个人的过渡经验对他们的心理和身体健康有潜在的影响，因此，为了最大限度地提高护理质量，卫生专业人员必须了解可能改善过渡经验的因素。
Purpose: Exploring the experiences of Australian adolescents with Cystic Fibrosis (CF) as they made the transition from paediatric to adult care. This often traumatic change of care was examined from the perspective of the two types of care, paediatric and adult, elements of a transition programme if available and psychosocial factors that may affect the transition.Method: Focused-in-depth interviews were conducted with six young adults with CF(19-34 years), asking them to describe their experiences during the transition period.Results: Thematic analysis of the transcribed interviews indicated that the four main areas that affected the transition experiences of the participants were paediatric and adult health care, the elements included in the transition programme, and psychosocial factors.Conclusions: The relationship of the patient with their paediatric doctor, the doctor's attitude towards the transition and the delivery of age-appropriate care appeared to influence the experiences of adolescents as they changed to adult care. Successful elements of a transition programme, if it was offered, were the orientation tours, the provision of information and the presence of a familiar face at adult clinics. Transition experiences of individuals had potential effects on their psychological and physical well-being so that, in order to maximize quality of care, health professionals must be aware of factors which may improve transition experiences.