Profiles of fatigue severity and variability among adolescents and young adults with cerebral palsy
Profiles of fatigue severity and variability among adolescents and young adults with cerebral palsy
复制标题
DOI：
10.1080/21641846.2017.1264950
复制
发表时间：
2017-01-01
影响因子：
2.8
通讯作者：
Bartlett, Doreen J.
中科院分区：
文献类型：
--
作者：
Brunton, Laura K.;Bartlett, Doreen J.
背景资料：脑性瘫痪（CP）患者的功能状态随着继发性损伤（如疲劳）的发展而发生渐进性变化。缺乏对CP中疲劳经验的详细描述。目的：本研究使用疲劳影响和严重度自我评估描述CP中疲劳的严重度和变异性。研究方法：这是一项描述性横断面研究，调查了130名（61名男性）CP患者（平均年龄18岁11个月; SD 4岁6个月）。分析包括两组之间的比较（粗大运动功能分类系统（GMFCS）I和II-V）、频率计数和比例。结果：GMFCS组之间存在显着差异的所有疲劳严重程度的问题。此外，38%被归类为GMFCS I级的个体报告其平均疲劳为中度至重度，53%在前一周内有三天或三天以上经历疲劳。68%的人被归类为GMFCS II-V级，他们的平均疲劳程度为中度至重度，78%的人在前一周有三天或三天以上感到疲劳。结论：疲劳是一种高度个体化的现象，无论功能能力如何，CP患者都有显著的负担。GMFCS II-V级的个人报告疲劳严重程度增加，并将受益于特定的管理干预措施。
Background: Individuals with cerebral palsy (CP) experience progressive changes in functional status with the development of secondary impairments such as fatigue. Detailed accounts of the fatigue experience in CP are lacking. Purpose: This study describes the severity and variability of fatigue in CP using the Fatigue Impact and Severity Self-Assessment. Methods: This was a descriptive cross-sectional study surveying 130 (61 males) individuals (mean age 18 years, 11 months; SD 4 years, 6 months) with CP. Analyses comprised comparisons between two groups (Gross Motor Function Classification System (GMFCS) I and II-V), frequency counts and proportions. Results: Significant differences exist between GMFCS groups for all fatigue severity questions. In addition, 38% of individuals classified as GMFCS level I reported their average fatigue as moderate to severe and 53% experienced fatigue on three or more days in the previous week. Sixty-eight percent of individuals classified as GMFCS levels II-V reported their average fatigue to be moderate to severe and 78% were fatigued on three or more days in the previous week. Conclusions: Fatigue is a highly individualised phenomenon with significant burden for individuals with CP regardless of functional ability. Individuals in GMFCS levels II-V reported increased fatigue severity and would benefit from specific management interventions.