DECISION-MAKING DURING SERIOUS ILLNESS - WHAT ROLE DO PATIENTS REALLY WANT TO PLAY
DECISION-MAKING DURING SERIOUS ILLNESS - WHAT ROLE DO PATIENTS REALLY WANT TO PLAY
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DOI：
10.1016/0895-4356(92)90110-9
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发表时间：
1992-09-01
影响因子：
7.2
通讯作者：
SLOAN, JA
中科院分区：
文献类型：
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作者：
DEGNER, LF;SLOAN, JA
进行了两项调查，以确定人们在选择癌症治疗时实际上想扮演什么角色。436名新诊断的癌症患者和482名普通市民参加了活动。偏好引起使用两个卡排序程序，每个描述了五个潜在的角色在决策。研究结果表明，被诊断患有危及生命的疾病的影响可能会影响参与的偏好。大多数（59%）的患者希望医生代表他们做出治疗决定，但64%的公众认为，如果他们患上癌症，他们希望自己选择治疗方法。大多数患者（51%）和公众（46%）希望他们的医生和家人分担决策责任，如果他们病得太重而无法参与。社会人口统计学变量仅占偏好方差的15%。这些变量在预测哪些群体希望在医疗决策中发挥更多或更少的积极作用时并不特别有用。
Two surveys were conducted to determine what roles people actually want to assume in selecting cancer treatments. 436 newly diagnosed cancer patients and 482 members of the general public participated. Preferences were elicited using two card sort procedures, each of which described five potential roles in decision making. Findings suggested that the impact of being diagnosed with a life-threatening illness may influence preferences to participate. The majority (59%) of patients wanted physicians to make treatment decisions on their behalf, but 64% of the public thought they would want to select their own treatment if they developed cancer. Most patients (51%) and members of the public (46%) wanted their physician and family to share responsibility for decision making if they were too ill to participate. Sociodemographic variables accounted for only 15% of variance in preferences. These variables are not particularly useful in making predictions about which groups want more or less active roles in medical decision making.