Care and Service at Home for Persons With Dementia in Europe
Care and Service at Home for Persons With Dementia in Europe
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DOI：
10.1111/jnu.12158
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发表时间：
2015-09-01
影响因子：
3.4
通讯作者：
Karlsson, Staffan
中科院分区：
文献类型：
--
作者：
Bokberg, Christina;Ahlstrom, Gerd;Karlsson, Staffan
目的描述8个欧洲国家从诊断到临终阶段为痴呆症患者提供和利用的家庭正式护理和服务。设计一项关于8个欧洲国家的描述性跨国设计，作为欧洲研究项目RightTimePlaceCare的一部分。方法每个国家的研究团队使用地图系统收集关于痴呆症护理和服务系统的国家特定信息。测绘系统由50种护理和服务活动组成。本研究选择了50项有关家庭护理和服务的预定义活动中的16项，并根据痴呆的不同阶段将其细分为三类。据报道，可获得性高于利用率，研究结果表明参与的八个国家之间的相似之处多于不同之处。尽管有几项基本护理和服务以及保健干预活动可供选择，但在大多数国家，很少有人利用这些活动。此外，专门的痴呆症护理和服务在参与国很少获得，甚至更少被利用。结论调查结果表明，在欧洲，痴呆症患者得到的是一般的、基础的正式护理和服务，但很少根据他们的特定需求进行调整。临床关系本研究描述了服务提供和利用之间的差距，使护士能够在疾病进展期间为痴呆症患者制定单独调整的护理计划。调查结果不包括护理质量或如何最好地组织有效护理和服务的问题。然而，这里介绍的护理和服务活动应该表明，在使痴呆症患者能够继续在家中生活方面，还有什么改进的空间。
PurposeTo describe available and utilized formal care and service at home for persons with dementia, from diagnosis to end-of-life stage, in eight European countries.DesignA descriptive cross-country design concerning eight European countries as a part of the European research project RightTimePlaceCare.MethodsThe research team in each country used a mapping system to collect country-specific information concerning dementia care and service system. The mapping system consists of 50 types of care and service activities. Sixteen of the 50 predefined activities concerning care and service at home were selected for this study and subdivided into three categories, following the stages of dementia.FindingsAvailability was reported to be higher than utilization, and the findings indicated more similarities than differences among the eight countries involved. Even though there were several available activities of basic care and services and healthcare interventions, they were utilized by few in most countries. Furthermore, specialized dementia care and services were sparsely available and even more sparsely utilized in the participating countries.ConclusionsThe findings indicated that persons with dementia in Europe received formal care and service on a general, basic level but seldom adjusted to their specific needs.Clinical RelevanceThis study describes the gap between service provision and utilization enabling nurses to develop individually adjusted care plans for persons with dementia during the progress of the disease. The findings do not include matters of quality of care or how to best organize effective care and services. However, the activities of care and services presented here should shed light on what room there is for improvement when it comes to enabling persons with dementia to go on living at home.