Everyday ethics in community-based participatory research
Everyday ethics in community-based participatory research
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DOI：
10.1080/21582041.2013.769618
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发表时间：
2013-01-01
影响因子：
2.4
通讯作者：
Strachan, Aileen
中科院分区：
文献类型：
--
作者：
Banks, Sarah;Armstrong, Andrea;Strachan, Aileen
本文探讨了一系列的伦理问题，出现在以社区为基础的参与式研究（CBPR），借鉴文献和实践中的例子。CBPR实践者的经验进一步增加了许多其他社会研究人员对研究伦理监管方法（重点是根据研究治理框架，行为守则和伦理审查程序遵守规则）的批评。然而，虽然CBPR中的许多伦理挑战是社会研究普遍存在的（知情同意，匿名，数据和发现的所有权问题），但CBPR的动态，复杂和基于价值的性质使它们特别突出。还有一些具体问题涉及伙伴关系工作的道德、合作、研究人员和被研究者之间界限的模糊、社区权利、社区冲突和民主参与，这些问题在CBPR中更经常遇到。本文用四个实例来论证这一论点。这些都是从一个年轻妇女的社区分配，一个社区组织研究贫困，一个青年同龄人研究项目和一个基于博物馆的数字讲故事项目。文章的结论是，目前的机构伦理守则，指导方针和伦理审查程序是不是特别适合CBPR，因为他们采用基于原则和监管方法的伦理，而字符和关系为基础的方法，伦理也是非常重要的CBPR，这是通过许多研究人员具有强烈的价值承诺，社会正义。
This article explores a range of ethical issues that arise in community-based participatory research (CBPR), drawing on literature and examples from practice. The experience of CBPR practitioners adds further weight to the growing critique by many other social researchers of regulatory approaches to research ethics (which focus on rule following in accordance with research governance frameworks, codes of conduct and ethics review procedures). Yet, whilst many of the ethical challenges in CBPR are common to social research generally (informed consent, anonymity, issues of ownership of data and findings), the dynamic, complex and value-based nature of CBPR gives them particular prominence. There are also specific issues relating to the ethics of partnership working, collaboration, blurring of boundaries between researchers and researched, community rights, community conflict and democratic participation that are more frequently encountered in CBPR. Four practice examples are used to demonstrate this argument. These are taken from a young women's community allotment, a community organisation researching poverty, a youth peer research project and a museum-based digital storytelling project. The article concludes that current institutional ethical codes, guidelines and ethical review procedures are not particularly well-suited to CBPR, in that they adopt principle-based and regulatory approaches to ethics; whereas character-and relationship-based approaches to ethics are also very important in CBPR, which is adopted by many researchers with a strong value commitment to social justice.