Data quality at the Cancer Registry of Norway: An overview of comparability, completeness, validity and timeliness
Data quality at the Cancer Registry of Norway: An overview of comparability, completeness, validity and timeliness
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DOI：
10.1016/j.ejca.2008.10.037
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发表时间：
2009-05-01
影响因子：
8.4
通讯作者：
Moller, Bjorn
中科院分区：
文献类型：
--
作者：
Larsen, Inger Kristin;Smastuen, Milada;Moller, Bjorn
目的：对挪威癌症登记处（CRN）收集的实体瘤和非实体瘤数据的质量进行全面评估。方法：采用既定的定量和半定量方法评估1953-2005年期间数据的可比性、完整性、准确性和及时性，特别关注2001-2005年登记期数据。结果：CRN编码和分类系统总体遵循国际标准，并有一些进一步的改进。形态分组的细分在内部进行。 2001-2005 年登记期间的总体完整性估计为 98.8%。仍然存在不同程度的漏报，尤其是血液恶性肿瘤 (C90-95) 和中枢神经系统肿瘤 (C70-72)。同期，93.8%的病例得到形态学验证（特定地点范围：60.0-99.8%）。根据次年登记处收到的病例数量，2005 年因及时公布而导致的漏报率估计为 2.2%。 结论：本次审查表明，CRN 的例行程序产生的可比较数据可以被认为是相当准确、接近完整和及时的，从而证明了我们在诊断年份一年后报告年度发病率的政策是合理的。 (C) 2008 Elsevier Ltd. 保留所有权利。
Aim: To provide a comprehensive evaluation of the quality of the data collected on both solid and non-solid tumours at the Cancer Registry of Norway (CRN).Methods: Established quantitative and semi-quantitative methods were used to assess comparability, completeness, accuracy and timeliness of data for the period 1953-2005, with special attention to the registration period 2001-2005.Results: The CRN coding and classification system by and large follows international standards, with some further subdivisions of morphology groupings performed in-house. The overall completeness was estimated at 98.8% for the registration period 2001-2005. There remains a variable degree of under-reporting particularly for haematological malignancies (C90-95) and tumours of the central nervous system (C70-72). For the same period, 93.8% of the cases were morphologically verified (site-specific range: 60.0-99.8%). The under-reporting in 2005 due to timely publication is estimated at 2.2% overall, based on the number of cases received at the registry during the following year.Conclusion: This review suggests the routines in place at the CRN yields comparable data that can be considered reasonably accurate, close-to-complete and timely, thereby justifying our policy of the reporting of annual incidence one year after the year of diagnosis. (C) 2008 Elsevier Ltd. All rights reserved.