Sense of coherence, rather than exercise capacity, is the stronger predictor to obtain health-related quality of life in adults with congenital heart disease
Sense of coherence, rather than exercise capacity, is the stronger predictor to obtain health-related quality of life in adults with congenital heart disease
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DOI：
10.1177/2047487313481753
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发表时间：
2014-08-01
影响因子：
8.3
通讯作者：
Hager, Alfred
中科院分区：
文献类型：
--
作者：
Mueller, Jan;Hess, John;Hager, Alfred
目标：无论他们的心血管发现，先天性心脏病（CHD）患者的生活质量是好的，甚至上级的健康对照。一致感（SOC）是一种关注支持人类健康和幸福的因素的心理资源，被认为是独立于疾病状态维持和改善生活质量的潜在途径。患者和方法：从2010年4月至2011年5月，我们连续纳入了546名患有各种CHD的年轻成人（236名女性，中位年龄26.9岁，年龄16 - 71岁）。患者完成SOC-13问卷和健康相关生活质量问卷SF-36。结果：成人CHD患者SOC与参考值相比略有增加（CHD：中位数74.0 [IQR：63.8; 81.0] vs.参考值：69.7 [68.5; 69.7]; p < 0.001），相当于预测参考值的106.1% [91.8; 116.7%]。SOC与基础心脏缺陷（Kruskal-Wallis检验，p = 0.565）或心脏缺陷严重程度（斯皮尔曼r = 0.044; p = 0.301）无关。除健康转变外，它与生活质量的所有维度中度相关（r = 0.260至r = 0.686; p < 0.001）。结论：成年冠心病患者SOC水平明显增高，SOC水平与生活质量呈中度相关，与运动能力（r = 0.098; p = 0.023）和年龄（r = -0.097; p = 0.023）相关性较差。SOC可以解释CHD患者尽管运动能力降低但生活质量良好的原因。
Objective: Irrespective of their cardiovascular findings, quality of life in patients with congenital heart disease (CHD) is good or even superior to that in healthy controls. The sense of coherence (SOC), a psychological resource that focuses on factors that support human health and well-being, was suggested to act as a potential pathway for maintaining and improving quality of life independently from the disease status.Patients and methods: From April 2010 to May 2011, we consecutively included 546 young adults (236 female, median age 26.9 years, aged from 16 to 71 years) with various CHD into the study. Patients completed the SOC-13 questionnaire and the health-related quality of life questionnaire SF-36. Afterwards they performed a cardiopulmonary exercise test.Results: In adults with CHD, SOC was slightly enhanced compared with reference values (CHD: median 74.0 [IQR: 63.8; 81.0] vs. reference value: 69.7 [68.5; 69.7]; p < 0.001) corresponding to 106.1% [91.8; 116.7%] of predicted reference value. SOC was not associated with the underlying heart defect (Kruskal-Wallis test, p = 0.565) or heart defect severity (Spearman r = 0.044; p = 0.301). It was moderately related to all dimensions of quality of life (r = 0.260 to r = 0.686; p < 0.001) except to health transition. It was only poorly associated with exercise capacity (r = 0.098; p = 0.023) and age (r = -0.097; p = 0.023).Conclusions: Adults with CHD have an enhanced SOC. SOC is moderately correlated with quality of life, and seems to be a stronger predictor of health-related life quality than exercise capacity. SOC might explain the rather good quality of life in patients with CHD despite their reduction in exercise capacity.