Designing and Evaluating a Digital Family Health History Tool for Spanish Speakers
Designing and Evaluating a Digital Family Health History Tool for Spanish Speakers
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DOI：
10.3390/ijerph16244979
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发表时间：
2019-12-02
影响因子：
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通讯作者：
Wang, Catharine
中科院分区：
文献类型：
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作者：
Diez, Maria Cerda;Cortes, Dharma E.;Wang, Catharine
已经开发了数字家庭健康史工具，但很少有人对非英语国家的人进行测试，并评估其可接受性和可用性。本研究描述了一种针对西班牙语使用者的家庭健康史工具(VICY：了解你的家族史的虚拟顾问)的文化和语言适应和评估。对56名讲西班牙语的参与者进行了深入访谈；30名参与者还参加了一个定性部分，以评估西班牙语VICY的可接受性和可用性。总体而言，维姬和遗传咨询师在家族史评估上的一致性是中等的(加权卡帕范围：中风的0.4695-心脏病的0.6615)，尽管这在疾病亚型中有所不同。参与者对使用维琪感到很舒服，并指出维基非常讨人喜欢，具有人类的特征。他们报告说，Vicky很容易导航，觉得说明非常清楚，并认为使用工具所需的时间恰到好处。西班牙维琪可能是一种有用的工具，可以收集家庭健康史，并被视为可接受和可用的。研究结果揭示了一些可能影响与家族史工具互动的文化差异，并为未来旨在设计和测试文化和语言多样化的数字系统的研究提供了参考。
Digital family health history tools have been developed but few have been tested with non-English speakers and evaluated for acceptability and usability. This study describes the cultural and linguistic adaptation and evaluation of a family health history tool (VICKY: VIrtual Counselor for Knowing Your Family History) for Spanish speakers. In-depth interviews were conducted with 56 Spanish-speaking participants; a subset of 30 also participated in a qualitative component to evaluate the acceptability and usability of Spanish VICKY. Overall, agreement in family history assessment was moderate between VICKY and a genetic counselor (weighted kappa range: 0.4695 for stroke-0.6615 for heart disease), although this varied across disease subtypes. Participants felt comfortable using VICKY and noted that VICKY was very likeable and possessed human-like characteristics. They reported that VICKY was very easy to navigate, felt that the instructions were very clear, and thought that the time it took to use the tool was just right. Spanish VICKY may be useful as a tool to collect family health history and was viewed as acceptable and usable. The study results shed light on some cultural differences that may influence interactions with family history tools and inform future research aimed at designing and testing culturally and linguistically diverse digital systems.