MATERNAL TIME AND THE CARE OF DISABLED-CHILDREN
MATERNAL TIME AND THE CARE OF DISABLED-CHILDREN
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DOI：
10.1111/j.1525-1446.1992.tb00097.x
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发表时间：
1992-09-01
影响因子：
2.1
通讯作者：
SIELAFF, BH
中科院分区：
文献类型：
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作者：
BRUST, JD;LEONARD, BJ;SIELAFF, BH
照顾残疾儿童越来越成为父母的责任，即使医疗护理很复杂。为了评估所需的时间承诺，133名残疾儿童的母亲被要求按具体的任务类别估计照顾儿童所需的额外时间。据报告，平均每天的总护理时间为12小时6分钟，其中6小时30分钟用于“警觉”任务(即，监视不能独处的儿童和/或提供情感支持)。多元回归分析显示，年龄较小的孩子身体和精神上的损伤更多，需要更多的医疗治疗，总照顾时间会增加。父母因需要照顾患有慢性病的孩子所需的时间过长，导致失去机会。因为这种负担主要是女性经历的，而且职业护士可以减轻一些负担，所以这个问题值得进一步研究。
Caring for disabled children has become increasingly the responsibility of parents, even when the medical care is complex. To assess the time commitment required, 133 mothers of disabled children were asked to estimate by specific task categories the extra time required to care for the children. Total average daily care time was reported at 12 hours and 6 minutes, with 6 hours and 30 minutes consumed in "vigilant" tasks (i.e., watching a child who cannot be left alone and/or providing emotional support). Multiple regression analysis showed an increase in total caregiving hours associated with a younger child who was more physically and mentally impaired, and who required more medical treatments. The amount of time required by parents to care for their chronically ill children of necessity results in lost opportunities. Because this burden is experienced primarily by women, and because professional nurses could alleviate some of the burden, this issue deserves further study.