Preliminary lessons learned from the "Native Navigators and the Cancer Continuum" (NNACC).

Preliminary lessons learned from the "Native Navigators and the Cancer Continuum" (NNACC).
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DOI:
10.1007/s13187-012-0316-5
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发表时间:
2012-04
期刊:
Journal of cancer education : the official journal of the American Association for Cancer Education
影响因子:
--
通讯作者:
Eschiti V
Eschiti V
中科院分区:
其他
文献类型:
--
作者:
Burhansstipanov L;Krebs LU;Watanabe-Galloway S;Petereit DG;Pingatore NL;Eschiti V

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这项以社区为基础的参与性研究(CBPR)研究是基于患者导航(Navigator)在三个原始站点:科罗拉多,密歇根州和南达科他州。2010年期间,该研究增加了两个地点:科曼奇国家和马斯科吉(克里克)国家(俄克拉荷马州)。干预措施包括24小时的导航实施的癌症教育计划,解决了癌症护理的完整连续性。合作伙伴包括每年与最多两个当地美洲原住民组织达成协议,称为备忘录土著组织,这些组织与当地美洲印第安人有着牢固的关系。家庭娱乐活动用于启动系列讲习班,收集基线数据,并在系列讲习班结束后3个月总结和评估系列讲习班。评估数据是使用观众反应系统(ARS)收集的,并使用在线评估程序存储。迄今取得的经验教训包括:机构审查委员会的程序需要区域和国家批准,耗时超过9个月。所有的研讨会幻灯片都缺少一些组件,需要改进。备忘录土著组织可交付成果的具体细节需要更多的细节。ARS需要额外的培训课程,但一旦学会了导航器使用ARS很好。使用NACR网站的密码保护页面存储所有NNACC研讨会和培训材料比使用其他在线存储程序更容易管理。社区对参加讲习班的兴趣超出预期。所有的导航员的技能都在提高,所有人都喜欢与社区合作。
This community-based participatory research (CBPR) study was based on patient navigation (Navigator) among three original sites: Colorado, Michigan, and South Dakota. During 2010, the study added two sites: the Comanche Nation and the Muscogee (Creek) Nation (Oklahoma). The intervention includes 24-h of a Navigator-implemented cancer education program that addresses the full continuum of cancer care. The partners include agreements with up to two local Native American organizations each year, called Memorandum Native Organizations, who have strong relationships with local American Indians. Family fun events are used to initiate the series of workshops and to collect baseline data and also to wrap up and evaluate the series 3 months following the completion of the workshop series. Evaluation data are collected using an audience response system (ARS) and stored using an online evaluation program. Among the lessons learned to date are: the Institutional Review Board processes required both regional and national approvals and took more than 9 months. All of the workshop slides were missing some components and needed refinements. The specifics for the Memorandum Native Organization deliverables needed more details. The ARS required additional training sessions, but once learned the Navigator use the ARS well. Use of the NACR website for a password-protected page to store all NNACC workshop and training materials was easier to manage than use of other online storage programs. The community interest in taking part in the workshops was greater than what was anticipated. All of the Navigators’ skills are improving and all are enjoying working with the community.