Challenges and Potential Opportunities of Mobile Phone Call Detail Records in Health Research: Review.
Challenges and Potential Opportunities of Mobile Phone Call Detail Records in Health Research: Review.
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DOI：
10.2196/mhealth.9974
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发表时间：
2018-07-19
影响因子：
5
通讯作者：
Ford DV
中科院分区：
文献类型：
--
作者：
Jones KH;Daniels H;Heys S;Ford DV
呼叫详细记录（CDR）由移动的网络运营商在提供其服务的过程中收集。CDR越来越多地与其他形式的大数据沿着用于研究，代表了一种具有公共利益潜力的新兴数据类型。许多司法管辖区都有健康数据研究的基础设施，这些基础设施可以从CDR与健康数据的整合中受益。本研究的目的是回顾CDR如何用于健康研究，并确定其与健康数据结合使用的挑战和潜在机会。使用主要搜索引擎的结构化检索词进行文献综述。初步确定了4066个项目。筛选后，46篇全文文章被纳入定性综合。提取的信息包括研究主题领域、研究人群、使用的数据集、信息管理和伦理考虑、研究结果和数据限制。大多数已发表的研究报告侧重于低收入和中等收入国家。利用社区发展报告中的地点要素，研究往往模拟传染病的传播或自然灾害后的人口流动估计，以期实施干预措施。CDR以匿名或聚合形式使用，获得监管批准的过程因数据提供商和司法管辖区而异。没有一份报告包括公众对在健康研究中使用CDR的看法。尽管存在各种挑战和限制，但匿名移动的电话CDR已成功用于健康研究。使用汇总数据是一种保障，但也是一种进一步的限制。如果在个人层面上将经验证的匿名CDR与常规健康记录相结合，则可以获得更多的机会，前提是许可和保障措施可以到位。需要进一步的工作，包括获得公众的意见，以制定一个道德基础的框架，在卫生研究中使用CDR。
Call detail records (CDRs) are collected by mobile network operators in the course of providing their service. CDRs are increasingly being used in research along with other forms of big data and represent an emerging data type with potential for public good. Many jurisdictions have infrastructures for health data research that could benefit from the integration of CDRs with health data. The objective of this study was to review how CDRs have been used in health research and to identify challenges and potential opportunities for their wider use in conjunction with health data. A literature review was conducted using structured search terms making use of major search engines. Initially, 4066 items were identified. Following screening, 46 full text articles were included in the qualitative synthesis. Information extracted included research topic area, population of study, datasets used, information governance and ethical considerations, study findings, and data limitations. The majority of published studies were focused on low-income and middle-income countries. Making use of the location element in CDRs, studies often modeled the transmission of infectious diseases or estimated population movement following natural disasters with a view to implementing interventions. CDRs were used in anonymized or aggregated form, and the process of gaining regulatory approvals varied with data provider and by jurisdiction. None included public views on the use of CDRs in health research. Despite various challenges and limitations, anonymized mobile phone CDRs have been used successfully in health research. The use of aggregated data is a safeguard but also a further limitation. Greater opportunities could be gained if validated anonymized CDRs were integrated with routine health records at an individual level, provided that permissions and safeguards could be put in place. Further work is needed, including gaining public views, to develop an ethically founded framework for the use of CDRs in health research.