Living with Parkinson's in England during and beyond COVID-19 restrictions: a longitudinal qualitative study
Living with Parkinson's in England during and beyond COVID-19 restrictions: a longitudinal qualitative study
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DOI：
10.1080/13607863.2023.2265319
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发表时间：
2023-09-28
影响因子：
3.4
通讯作者：
Simpson，Jane
中科院分区：
文献类型：
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作者：
Murray，Craig D.;Eccles，Fiona J. R.;Simpson，Jane
目标政府为防止 COVID-19 病毒传播而实施的封锁限制产生了一系列意想不到的负面影响。一组身心健康受到显着且不成比例影响的人是帕金森病患者。然而，研究主要是横向的，之前没有研究通过封锁和放松限制对参与者进行定性跟踪。因此，本研究旨在详细了解封锁的经历以及放松对帕金森氏症患者身心健康的限制。方法使用解释性现象学分析对同一参与者（六名男性和四名女性）在 18 个月期间（2020 年 5 月至 2021 年 9 月）的四个时间点收集的半结构化访谈数据进行分析。结果得出三个主题：（1） 在大流行期间与帕金森病患者的身份、代理和控制权作斗争； (2) 帕金森未来的侵占和加速； (3) 将优先事项从 COVID-19 重新调整为帕金森氏症。结论作为目前唯一发表的对该人群进行深入纵向分析的研究，我们使用了更具动态性的理论说明，即施特劳斯和科尔宾的疾病轨迹理论，来理解研究结果并提出在大流行的这一阶段支持帕金森氏症患者的方法。所需支持的规模和广度是当前法定体系面临的重大挑战。
ObjectivesGovernment-enforced lockdown restrictions associated with preventing the spread of the COVID-19 virus had a series of unintended, negative effects. One group of individuals whose physical and mental health was significantly and disproportionately impacted were those with Parkinson’s. However, research has been mainly cross-sectional, with no previous study qualitatively following up participants through both lockdowns and the easing of restrictions. Consequently, this study aimed to provide a detailed understanding of the experience of lockdowns and the easing of restrictions on the physical and mental health of people with Parkinson’s.MethodData from semi-structured interviews collected at four time points across an 18-month period (May 2020 – September 2021) from the same participants (six men and four women) were analysed using interpretative phenomenological analysis.ResultsThree themes were derived: (1) Wrestling with a Parkinson’s identity, agency and control during the pandemic; (2) The encroachment and acceleration of a Parkinson’s future; and (3) Recalibrating priorities from COVID-19 to Parkinson’s.ConclusionAs currently the only published study to provide an in-depth longitudinal analysis with this population, we used a more dynamic theoretical account, Strauss and Corbin’s theory of illness trajectories, to understand the findings and suggest ways of supporting individuals with Parkinson’s in this stage of the pandemic. The scale and breadth of the support needed is a significant challenge for current statutory systems.