What Primary Care Practitioners Need to Know about the New NICE Guideline for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults.
What Primary Care Practitioners Need to Know about the New NICE Guideline for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults.
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DOI：
10.3390/healthcare10122438
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发表时间：
2022-12-02
期刊：
影响因子：
2.8
通讯作者：
Nacul, Luis
中科院分区：
文献类型：
--
作者：
Kingdon, Caroline;Lowe, Adam;Shepherd, Charles;Nacul, Luis
2021年10月发布的新NICE肌痛性脑脊髓炎/慢性疲劳综合征（ME/CFS）指南对治疗建议做出了重大改变。它承认这种慢性疾病的复杂性，它总是影响生活质量，并可能严重致残，认识到ME/CFS患者在没有任何特定诊断测试的情况下经常经历的偏见和耻辱。该指南概述了准确诊断的步骤，将运动后不适视为核心症状;重要的是，ME/CFS现在可以在短短3个月后诊断出来，以改善长期健康结果。它建议需要由一个多学科团队进行个性化的管理，确保个人的福祉是最重要的。该指南明确指出，任何基于身体活动或运动的固定增量增加的计划，例如分级运动疗法（GET），不应作为ME/CFS的治疗提供，并强调认知行为疗法（CBT）仅应作为支持性干预提供。由于NICE委员会审查所要求的严格方法，以及委员会成员中具有生活经验的人的证词，该指南将影响英国及其他地区ME/CFS的未来诊断和管理。
The new NICE guideline for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), published in October 2021, makes significant changes in treatment recommendations. It acknowledges the complexity of this chronic medical condition, which always impacts quality of life and can be profoundly disabling, recognising the prejudice and stigma that people with ME/CFS often experience in the absence of any specific diagnostic test. The guideline outlines steps for accurate diagnosis, recognising post-exertional malaise as a core symptom; importantly, ME/CFS can now be diagnosed after just 3 months in a bid to improve long-term health outcomes. It recommends the need for individual, tailored management by a multi-disciplinary team, ensuring that the wellbeing of the individual is paramount. The guideline makes clear that any programme based on fixed incremental increases in physical activity or exercise, for example, graded exercise therapy (GET), should not be offered as a treatment for ME/CFS and emphasises that cognitive behavioural therapy (CBT) should only be offered as a supportive intervention. Because of the rigorous methodology required by NICE Committee review and the inclusion of the testimony of people with lived experience as committee members, this guideline will influence the future diagnosis and management of ME/CFS in the UK and beyond.
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DOI：
10.3390/healthcare9050553
发表时间：
2021-05-09
期刊：
Healthcare (Basel, Switzerland)
影响因子：
--
作者：
Fennell PA;Dorr N;George SS
通讯作者：
George SS
影响因子：
5
作者：
Klimas, Nancy G;Koneru, Anne O'Brien
通讯作者：
Koneru, Anne O'Brien
影响因子：
9.3
作者：
Nacul, Luis C.;Lacerda, Eliana M.;Drachler, Maria L.
通讯作者：
Drachler, Maria L.
影响因子：
17.3
作者：
Chidgey, Jayne;Leng, Gillian;Lacey, Terence
通讯作者：
Lacey, Terence
影响因子：
3.9
作者：
O'Boyle S;Nacul L;Nacul FE;Mudie K;Kingdon CC;Cliff JM;Clark TG;Dockrell HM;Lacerda EM
通讯作者：
Lacerda EM