On assessing responsiveness of health-related quality of life instruments: Guidelines for instrument evaluation

On assessing responsiveness of health-related quality of life instruments: Guidelines for instrument evaluation
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DOI:
10.1023/a:1023499322593
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发表时间:
2003-06-01
影响因子:
3.5
通讯作者:
Bossuyt, PMM
Bossuyt, PMM
中科院分区:
医学2区
文献类型:
--
作者:
Terwee, CB;Dekker, FW;Bossuyt, PMM

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关于评价响应性的定义和适当的方法缺乏清晰度。概述了用于计算通过文献搜索确定的响应性的不同类别的定义和方法。共找到25个定义和31个测量方法。当应用于一般的和疾病特定的生活质量问卷时,观察到结果有很大的差异,部分原因是现有方法的目标不同。评估健康相关的生活质量(HRQL)工具的有用性被认为是四个主要问题。讨论了它们与响应性的关系。对应答性的混淆主要是因为缺乏对横向效度和纵向效度的区分,也没有区分被定义为治疗效果的应答性和被定义为工具变化与其他衡量标准变化之间的相关性的应答性。目前所谓的反应性的所有测量都可以被视为纵向有效性的测量或治疗效果的测量。后者很少告诉我们乐器有多好地服务于它的目的,只在解释分数变化时有用。因此,我们认为,响应性的概念可以作为评估工具的一个单独的测量属性而被拒绝。
A lack of clarity exists about the definition and adequate approach for evaluating responsiveness. An overview is presented of different categories of definitions and methods used for calculating responsiveness identified through a literature search. Twenty-five definitions and 31 measures were found. When applied to a general and a disease-specific quality of life questionnaire large variation in results was observed, partly explained by different goals of existing methods. Four major issues are considered to claim the usefulness of an evaluative health-related quality of life (HRQL) instrument. Their relation with responsiveness is discussed. The confusion about responsiveness arises mostly from a lack of distinction between cross-sectional and longitudinal validity and from a lack of distinction between responsiveness defined as the effect of treatment and responsiveness defined as the correlation of changes in the instrument with changes in other measures. All measures of what is currently called responsiveness can be looked at as measures of longitudinal validity or as measures of treatment effect. The latter ones tell us little about how well the instrument serves its purpose and are only of use in interpreting score changes. We therefore argue that the concept of responsiveness can be rejected as a separate measurement property of an evaluative instrument.