Recontact in clinical practice: a survey of clinical genetics services in the United Kingdom.
Recontact in clinical practice: a survey of clinical genetics services in the United Kingdom.
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DOI：
10.1038/gim.2015.194
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发表时间：
2016-09
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影响因子：
--
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中科院分区：
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以确定在英国是否以及如何发生重新联系。Genet Med 18 9,876-881.2014年10月至2015年7月，一项基于网络的调查在网上进行。通过电子邮件邀请英国23家临床遗传学服务机构的临床线索，并与高级临床遗传学工作人员进行跟踪，分发了该调查的链接。Genet Med 18 9,876-881.大多数英国服务机构报告说，他们会重新联系患者及其家人。然而，当计划外事件导致临床医生审阅文件(触发因素)时，重新联系通常以特别的方式发生。在英国，没有标准化的重新联系做法。超过一半的服务机构不确定是否应该实施正式的重新联系系统。一些人建议在重新联系的过程中有更多的患者参与。Genet Med 18 9,876-881.这项研究表明，在决定是否以及如何实施这种服务或制定最佳做法模式指南之前，有必要对国民保健服务内潜在的再联系系统的有效性和可持续性进行彻底评估。Genet Med 18 9,876-881.
To ascertain whether and how recontacting occurs in the United Kingdom. Genet Med 18 9, 876–881. A Web-based survey was administered online between October 2014 and July 2015. A link to the survey was circulated via an e-mail invitation to the clinical leads of the United Kingdom's 23 clinical genetics services, with follow-up with senior clinical genetics staff. Genet Med 18 9, 876–881. The majority of UK services reported that they recontact patients and their family members. However, recontacting generally occurs in an ad hoc fashion when an unplanned event causes clinicians to review a file (a “trigger”). There are no standardized recontacting practices in the United Kingdom. More than half of the services were unsure whether formalized recontacting systems should be implemented. Some suggested greater patient involvement in the process of recontacting. Genet Med 18 9, 876–881. This research suggests that a thorough evaluation of the efficacy and sustainability of potential recontacting systems within the National Health Service would be necessary before deciding whether and how to implement such a service or to create guidelines on best-practice models. Genet Med 18 9, 876–881.
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