Stigma and discrimination towards people with schizophrenia and their family members -: A qualitative study with focus groups
Stigma and discrimination towards people with schizophrenia and their family members -: A qualitative study with focus groups
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DOI：
10.1007/s00127-006-0126-3
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发表时间：
2007-01-01
影响因子：
4.4
通讯作者：
Guimon, Jose
中科院分区：
文献类型：
--
作者：
Angel Gonzalez-Torres, Miguel;Oraa, Rodrigo;Guimon, Jose
背景：关于精神分裂症患者及其亲属所经历的实际耻辱和歧视的数据很少。这些经历可能因所涉的具体社会群体而有很大差异。我们用定性的方法探讨了我们文化中的这种现象。方法：我们开发了一个定性研究的焦点组临床稳定的精神分裂症门诊患者（N = 18）和亲属（N = 26）。在每个样品中进行三组。结果如下：从患者的数据中提取了六类污名和歧视经历：精神疾病与缺乏意愿、与邪恶有关的恐惧、过度保护-歧视、日常社会歧视、医疗歧视、后代、回避-社会孤立。亲属的数据分为三组：亲属见证的对患者的歧视，亲属自己遭受的歧视和亲属对患者施加的歧视。结论：患者和亲属描述了各种各样的耻辱和歧视的经验，在生活的各个领域，包括医疗保健。孤立和回避是对这些经历的常见反应。宣传这些污名化和歧视的经历有助于减少社会上的污名化态度，并使患者产生更健康的反应，有利于更好地治疗疾病。
Background: There is a scarcity of data regarding the actual stigma and discrimination experienced by schizophrenic patients and their relatives. Those experiences can vary significantly depending on the specific social group involved. We have explored such phenomena in our culture with a qualitative technique. Methods: We developed a qualitative study with focus groups of clinically stable schizophrenic outpatients (N = 18) and relatives (N = 26). Three groups were performed in each sample. Results: Six categories of stigma and discrimination experiences were extracted from the patients' data: Mental illness vs. Lack of will, Prejudice related to dangerousness, Over-protection-infantilization, Daily social discrimination, Discrimination in health care, Descendants, Avoidance-social isolation. Data from relatives were divided into three sets: discrimination towards the patients witnessed by relatives, discrimination suffered by the relatives themselves and discrimination exerted by the relatives on the patients. Conclusions: Patients and relatives describe a great variety of stigma and discrimination experiences in all areas of life, including health care. Isolation and avoidance are common reactions to those experiences. Publicizing these stigma and discrimination experiences could help to reduce stigmatizing attitudes in society and result in healthier reactions from patients, favoring a better course of the illness.