Evidence-based patient information about treatment of multiple sclerosis- : A phase one study on comprehension and emotional responses
Evidence-based patient information about treatment of multiple sclerosis- : A phase one study on comprehension and emotional responses
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DOI：
10.1016/j.pec.2005.06.002
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发表时间：
2006-07-01
影响因子：
3.5
通讯作者：
Heesen, Christoph
中科院分区：
文献类型：
--
作者：
Kasper, Juergen;Koepke, Sascha;Heesen, Christoph
目的：本研究分析了多发性硬化症患者在提供循证信息模块时的理解和情绪反应。它是免疫治疗综合决策辅助的核心模块。核心模块旨在使患者能够处理科学不确定性而不会产生不利影响。它考虑了风险沟通和数据呈现的现有标准。方法：我们使用邮寄方法，采用前后设计调查了 169 名具有不同病程的患者。项目涉及处理相对和绝对风险信息的能力以及患者对工具的情绪反应，包括对信息的熟悉程度、理解、相关性、情绪唤起和确定性。 结果：总体而言，计算能力有所提高（p < 0.001），尽管 169 名患者中有 99 人没有正确完成计算任务。理解取决于与病程的相关性。引发了中等程度的不确定性。无论是理解信息的人还是未发展计算能力的人，都没有表现出不良情绪反应。结论：总而言之，该工具支持多发性硬化症患者处理基于证据的医疗信息和科学不确定性，而不会给他们带来情感负担。实践意义：本研究是记录复杂干预开发过程中重要步骤的一个例子。 (c) 2005 Elsevier Ireland Ltd. 保留所有权利。
Objective: This study analysis the comprehension and emotional responses of people suffering from multiple sclerosis when provided with an evidence-based information module. It is a core module of a comprehensive decision aid about immunotherapy. The core module is designed to enable patients to process scientific uncertainty without adverse effects. It considers existing standards for risk communication and presentation of data.Methods: Using a mailing approach we investigated 169 patients with differing courses of disease in a before-after design. Items addressed the competence in processing relative and absolute risk information and patients' emotional response to the tool, comprising grade of familiarity with the information, understanding, relevance, emotional arousal, and certainty.Results: Overall, numeracy improved (p < 0.001), although 99 of 169 patients did not complete the numeracy task correctly. Understanding depended on the relevance related to the course of disease. A moderate level of uncertainty was induced. No adverse emotional responses could be shown, neither in those who did comprehend the information, nor in those who did not develop numeracy skills.Conclusion: In conclusion, the tool supports people suffering from multiple sclerosis to process evidence-based medical information and scientific uncertainty without burdening them emotionally. Practice implications: This study is an example for the documentation of an important step in the development process of a complex intervention. (c) 2005 Elsevier Ireland Ltd. All rights reserved.