End-of-Life and Palliative Care for People with Intellectual Disabilities Who have Cancer or Other Life-Limiting Illness: A Review of the Literature and Available Resources
End-of-Life and Palliative Care for People with Intellectual Disabilities Who have Cancer or Other Life-Limiting Illness: A Review of the Literature and Available Resources
复制标题
患有癌症或其他限制生命疾病的智力障碍者的临终关怀和姑息治疗：文献和可用资源回顾
DOI：
10.1111/j.1468-3148.2006.00350.x
复制
发表时间：
2007
影响因子：
2.4
通讯作者：
L. Curfs
中科院分区：
文献类型：
--
作者：
I. Tuffrey‐Wijne;J. Hogg;L. Curfs
随着发病率和死亡率的变化，越来越多的智力残疾人患上癌症或其他限制生命的疾病。本文回顾了有关智障人士对姑息治疗需求的文献。
方法检索一系列数据库和万维网的相关论文，书籍章节，培训和信息材料，未出版的材料和政策指南。 包括1995年至2005年的出版物。
结果-虽然近年来发表的材料稳步增加，但有关智障人士姑息治疗需求的研究数据仍然很少。 病例报告是探索相关问题的最普遍方法。本文概述了文献中确定的问题，特别侧重于疼痛和症状评估，伦理问题，服务规划和培训需求。
结论目前的知识存在重大差距。 作者对未来的研究和开发领域提出了建议。
Background As patterns of morbidity and mortality are changing, more people with intellectual disabilities develop cancer or other life-limiting illness. This paper reviews the literature around the need of people with intellectual disabilities for palliative care.
Methods A range of databases and the World Wide Web were searched for relevant papers, book chapters, training and information materials, unpublished materials and policy guidelines. Publications from 1995 to 2005 are included.
Findings Although there has been a steady increase in published materials in recent years, research data around the palliative care needs of people with intellectual disabilities remain scarce. Case reports are the most prevalent method of exploring pertinent issues. The paper presents an overview of issues identified in the literature, with a particular focus on pain and symptom assessment, ethical issues, service planning and training needs.
Conclusion There are significant gaps in current knowledge. The authors make recommendations for future areas of research and development.
机构和社区中精神发育迟滞者的死亡率比较。
DOI：
--
发表时间：
1996
期刊：
American journal of mental retardation : AJMR.
影响因子：
--
作者：
Strauss,D;Kastner,TA
通讯作者：
Kastner,TA