Qualitative validation of the FACIT-Fatigue scale in systemic lupus erythematosus
Qualitative validation of the FACIT-Fatigue scale in systemic lupus erythematosus
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DOI：
10.1177/0961203313476360
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发表时间：
2013-04-01
期刊：
影响因子：
2.6
通讯作者：
Cella, D.
中科院分区：
文献类型：
--
作者：
Kosinski, M.;Gajria, K.;Cella, D.
目的：系统性红斑狼疮（SLE）患者的疲劳是一个负担，必须使用有效的量表进行评估。虽然慢性疾病治疗疲劳（FACIT-疲劳）量表的心理测量学特性在SLE中已经进行了评估，其内容效度在这种疾病中仍有待评估。因此，本研究的目的是评价FACIT疲劳量表在SLE中的内容效度。方法：三个SLE焦点小组（n = 21）在美国进行了半结构化访谈。参与者的意见进行了分类的响应类型，相对响应强度进行了定性评估。结果：参与者大多为女性（90%; n = 19），白色（57%; n = 12），平均年龄为43.7岁（范围= 28-70）。大多数量表项目被认为是相关的，但有四个项目除外，参与者对这四个项目的解释各不相同。与量表的测量模型一致，第3项中的“无精打采”（“我感觉无精打采（‘精疲力尽’）”）被解释为身体或精神损伤。参与者对第8项（“我能够进行日常活动”）的回答有时包括其他健康状况的影响，这是可以接受的，因为很难区分疾病特异性疲劳和一般疲劳。一些参与者发现第7项（“我有精力”）无关紧要，大多数人无法与第10项（“我太累了，吃不下”）联系起来。然而，这两个项目都旨在记录疲劳的极端情况（项目7，上限;项目10，下限）。结论：从内容的角度来看，FACIT疲劳量表的项目与测量SLE的疲劳相关。Lupus（2013）22，422-430.
Objective: Fatigue in systemic lupus erythematosus (SLE) is burdensome and must be assessed using validated scales. Although the psychometric properties of the Functional Assessment of Chronic Illness Therapy-Fatigue (FACIT-Fatigue) scale in SLE have been evaluated previously, its content validity in this disease remains to be evaluated. The study objective was, therefore, to evaluate content validity of the FACIT-Fatigue in SLE. Methods: Three SLE focus groups (n = 21) in the United States were conducted using semi-structured interviews. Participant comments were categorized by response type, and relative response strength was qualitatively assessed. Results: Participants were mostly female (90%; n = 19), white (57%; n = 12) with a mean age of 43.7 years (range = 28-70). Most scale items were considered relevant with the exception of four items for which participant interpretations varied. Consistent with the scale's measurement model, "listless" on item 3 ("I feel listless ('washed out')") was interpreted as physical or mental impairment. Participant responses to item 8 ("I am able to do my usual activities") sometimes included influence of other health conditions, which is acceptable because it is difficult to separate disease-specific and general fatigue. Some participants found item 7 ("I have energy") irrelevant and most could not relate to item 10 ("I am too tired to eat"). However, both items were intended to capture the extreme ends of fatigue (item 7, ceiling; item 10, floor). Conclusions: From a content perspective, items of the FACIT-Fatigue scale were relevant for measuring fatigue in SLE. Lupus (2013) 22, 422-430.