Family support for native Hawaiian women with breast cancer
Family support for native Hawaiian women with breast cancer
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DOI：
10.1007/bf03174336
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发表时间：
2007
影响因子：
1.6
通讯作者：
N. Mokuau;K. Braun
中科院分区：
文献类型：
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作者：
N. Mokuau;K. Braun
背景。癌症诊断不仅影响个人，而且影响整个家庭。尽管越来越多的文献将家庭支持作为癌症治疗的一种资源，但关于癌症如何影响非西方文化家庭的研究却很少。夏威夷土著妇女是遭受癌症不成比例负担的少数群体。在这项研究中，8名患有乳腺癌的夏威夷土著妇女和17名其他患有乳腺癌的夏威夷土著妇女的家庭成员参加了调查家庭支持的焦点小组。具体而言，家庭提供的支持类型（例如，信息、情感和有形）、家庭角色的变化动态以及对卫生保健提供者的建议，并关注文化对家庭支持的影响，是研究的主题。与其他人群相似，夏威夷原住民将家庭视为癌症女性最重要的情感和物质支持来源，并认为在面对癌症时，需要为患者和家庭提供更多的信息支持。然而，他们对theohana（家庭）中特定文化价值和实践的参考[例如，haku（家庭联络）和ho omana（灵性）]反映了这一人群临床工作的独特性。考虑到文化价值和习俗可以加强对这一人口的保健服务。
Background. A cancer diagnosis affects not only the individual but the entire family. Despite the growing body of literature on family support as a resource in cancer care, there is very little research on how cancer affects families in non-Western cultures. A minority population that experiences a disproportionate burden from cancer is Native Hawaiian women.Methods. In this study, 8 Native Hawaiian women with breast cancer and 17 family members of other Native Hawaiian women with breast cancer participated in focus groups examining family support. Specifically, types of support provided by the family (eg, informational, emotional, and tangible), changing dynamics of family roles, and recommendations for health care providers, with attention paid to the influence of culture on family support, were topics that were examined.Results. Similarly to other populations, Native Hawaiians viewed the family as the most important source of emotional and tangible support for women with cancer, and identified a need for increased informational support for both patients and families in the face of cancer. However, their reference to specific cultural values and practices within theohana(family) [eg,haku(family liaison) andho omana(spirituality)] reflects a uniqueness that has implications for clinical work with this population.Conclusions. Consideration of cultural values and practices may enhance health care services for this population.