Informational and emotional support received by relatives before and after the cancer patient's death
Informational and emotional support received by relatives before and after the cancer patient's death
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DOI：
10.1016/j.ejon.2005.04.003
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发表时间：
2006-02-01
影响因子：
2.8
通讯作者：
Lauri, Sirkka
中科院分区：
文献类型：
--
作者：
Eriksson, Elina;Arve, Seija;Lauri, Sirkka
本研究的目的是了解癌症患者的亲属对他们在患者死亡前后从医疗保健专业人员那里获得的信息和情感支持的看法。收集的数据与结构化的问卷调查管理的癌症患者的亲属谁死在一个7个医疗保健中心和在芬兰西南部的一个临终关怀在2年内收集数据之前。由工作人员向每位成年患者（n = 910）的一名家庭成员发送问卷。最终样本包括376名家庭成员，其中大部分是已故患者的配偶或子女。家属们认为，无论是在病人去世之前还是之后，他们都得到了医疗保健专业人员相当多的支持。在病人去世之前，亲属收到的大多数信息都与病人的病情和治疗有关。他们得到的关于现有财政支助形式的信息较少。沟通是诚实的，所提供的信息易于理解，并以亲属的需要为基础。病人临终前的情感支持主要包括接受亲属和倾听亲属的意见。然而，亲属们谈论他们日常生活中的困难的机会有限。病人去世后，工作人员大多支持亲属，表示接受他们，并给他们想要的时间。患者和亲属的一些背景变量与患者死亡前后亲属获得的支持相关。(C)2005爱思唯尔有限公司保留所有权利。
The purpose of this study is to find out what cancer patients' relatives think about the informational and emotional support they receive from health care professionals before and after the patient's death. The data were collected with a structured questionnaire administered to relatives of cancer patients who had died in one of seven health care centres and in one hospice in south-western Finland during a 2-year period before data collection. The questionnaires were sent out by staff to one family member of each adult patient (n = 910). The final sample comprised 376 family members, most of whom were the deceased patient's spouses or children. Relatives felt that they had received fairly much support from health care professionals, both before and after the patient's death. Before the patient's death most of the information received by relatives concerned the patient's illness and treatment. They received less information about forms of financial support available. Communication had been honest and the information provided was easy to understand and based upon the relatives' needs. Emotional support before the patient's death consisted mainly of acceptance of the relative and listening to what relatives had to say. However, relatives had only limited opportunity to talk about their difficulties in everyday life. After the death of the patient, staff had mostly supported relatives by showing their acceptance of them and by giving them the time they wanted. Some background variables for both patients and relatives correlated with the support received by relatives before and after the patient's death. (C) 2005 Elsevier Ltd. All rights reserved.