Sources of Caregiving Burden in Middle-Aged and Older Latino Caregivers
Sources of Caregiving Burden in Middle-Aged and Older Latino Caregivers
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DOI：
10.1177/0891988719874119
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发表时间：
2019-09-11
影响因子：
2.6
通讯作者：
Marquez, David Xavier
中科院分区：
文献类型：
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作者：
Balbim, Guilherme Moraes;Magallanes, Melissa;Marquez, David Xavier
目的：我们旨在确定中老年拉丁裔阿尔茨海默病及相关痴呆（ADRD）患者照顾者负担的来源。方法：参与者通过拉什阿尔茨海默病中心临床数据存储库的协议招募。我们对16名中老年拉丁美洲人进行了半结构化访谈，他们是被诊断为ADRD的家庭成员的主要照顾者。访谈指南由问题和探针组成，以捕捉参与者对家庭照顾的看法。直接进行含量分析。结果：参与者年龄在50至75岁之间（n = 16），大多数为女性（n = 12）。确定的负担来源是(1)照顾者的责任，(2)照顾相关的健康下降，(3)缺乏支持，(4)经济状况，(5)警惕，(6)对未来的担忧。结论：性别角色的影响似乎在照顾者对负担来源的认知中发挥作用，特别是在照顾者责任和缺乏支持的认知方面。拉丁美洲人的文化价值观，如家庭主义和玛丽主义，可能加剧了家庭照顾方面的性别差异。
Objective: We aimed to identify sources of caregiver burden in middle-aged and older Latino caregivers of people with Alzheimer disease and related dementia (ADRD). Methods: Participants were recruited through an agreement with the Rush Alzheimer's Disease Center Clinic Data Repository. We conducted semistructured interviews with 16 middle-aged and older Latinos who were the primary caregiver for a family member diagnosed with ADRD. The interview guide consisted of questions and probes to capture participants' perceptions of family caregiving. Direct content analysis was performed. Results: Participants were aged 50 to 75 years (n = 16) and a majority female (n = 12). The sources of burden identified were (1) caregiver responsibilities, (2) caregiving-related health decline, (3) lack of support, (4) financial status, (5) vigilance, and (6) concerns about the future. Conclusions: The influence of gender roles seemed to play a role in caregivers' perceptions of sources of burden, especially on caregiver responsibilities and perceptions of lack of support. Latinos cultural values such as familismo and marianismo likely reinforced gender disparities in family caregiving.