Opportunities for improving oncology care.
Opportunities for improving oncology care.
复制标题
改善肿瘤护理的机会。
DOI：
10.1016/s1470-2045(18)30208-0
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发表时间：
2018
期刊：
影响因子：
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通讯作者：
Syrjala,KarenL
中科院分区：
文献类型：
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作者：
Syrjala,KarenL
您想查看我的 Fitbit 仪表板，其中包含我过去一周的心率和步数吗？我可以通过 Skype 或 FaceTime 与您联系，以便您查看我的皮疹吗？有没有可以用来锻炼或冥想的移动应用程序？当56岁的夏洛特因急性髓性白血病接受造血干细胞移植两年后回来进行长期随访时，她很高兴自己已经跨过了这一重大障碍，没有复发。她为预约做准备，通过查看移植网站来了解幸存者可能遇到的不同问题，阅读有关移植物抗宿主病皮疹的论文，并列出她的担忧和问题。经过一番努力，她感到不知所措，不知道如何从众多信息中选择自己需要的东西。另一方面，26 岁的艾莉森在没有任何文献或问题的情况下进行了为期 5 年的随访。她的首要任务是赶上她的事业——因多年的治疗而推迟——以及一段初露端倪的关系，这引发了关于生孩子的新问题。 She was more than ready to be done with cancer.她没有考虑自己增加的心血管疾病和乳腺癌风险，也没有考虑在 29 岁时开始接受乳房 X 光检查，因为她在癌症治疗期间接受了胸部放射线照射。我希望夏洛特和艾莉森都能获得有用的工具来帮助管理他们在希望的漫长生存岁月中可能出现的健康问题。数字方法为癌症幸存者带来了巨大的希望。与夏洛特和艾莉森一样，癌症幸存者有多种健康需求，这些需求高度个性化，并且往往超过未患癌症的患者。出于这些原因，正在为长期幸存者实施幸存者护理计划，并且与所有学习一样，我们发现获得信息是不够的，幸存者需要帮助将这些信息应用到他们独特的情况和生命中的时间。
Do you want to see my Fitbit dashboard with my heart rate and number of steps the past week? Can I talk to you on Skype or FaceTime so you can see my rash? Is there a mobile app I can use for exercise or meditation? When Charlotte, aged 56 years, came back for her long-term follow-up visit 2 years after her haematopoietic stem cell transplant for acute myeloid leukaemia, she was delighted that she had passed this major hurdle without a recurrence. She had prepared for her appointment by looking at transplant websites for different problems survivors can have, reading papers on graft versus host disease rash, and making a list of her concerns and questions. After all her diligence, she felt overwhelmed and unsure about how to select what she needed from all the information. Allyson on the other hand, aged 26 years, came in for her 5-year follow-up armed with no literature or questions. Her priorities were catching up on her career—delayed by years of treatment—and a budding relationship that had instigated new questions about having kids. She was more than ready to be done with cancer. She was not thinking about her increased cardiovascular and breast cancer risk or about starting her mammograms at age 29 years because she had chest radiation exposure during cancer treatment. I wanted both Charlotte and Allyson to have access to useful tools to help manage the health concerns I knew could arise over their hopefully long years of survivorship.Digital methods offer tremendous promise to cancer survivors. As with Charlotte and Allyson, cancer survivors have diverse health needs that are highly personal and often exceed those of patients who have not had cancer. For these reasons, survivorship care plans are being implemented for long-term survivors, and, as with all learning, we find that access to information is not enough, survivors need assistance in applying that information to their unique situations and time in life.