Community-based participatory research in practice-based research networks

Community-based participatory research in practice-based research networks
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DOI:
10.1370/afm.511
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发表时间:
2006-01-01
影响因子:
4.4
通讯作者:
Herbert, C
Herbert, C
中科院分区:
医学1区
文献类型:
--
作者:
Westfall, JM;VanVorst, RF;Herbert, C

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目的:我们想描述基于实践的研究网络中的社区参与性研究在美国。方法:我们调查了所有确定的基于实践的研究网络(PBRN)在美国,以了解他们是否有一个机制,从社区获得反馈或参与PBRN医生服务的患者。我们问开放式的问题,他们如何参与社区成员,他们是否有计划,为未来的社区成员和/或patients. Results的参与,我们收到了46份完整的问卷(71%的回复率)。24个国家报告说,它们有某种机制让社区成员和/或患者参与其研究。没有PBRN报告充分参与的方法,但是,几个PBRN报告积极参与社区成员产生的研究思路,审查研究协议,解释结果,并传播findings.CONCLUSION虽然也许不符合CBPR的经典定义,一些PBRN涉及社区成员和患者在他们的研究。社区成员广泛参与PBRN研究。许多PBRN报告计划让社区成员参与其研究。我们相信,社区参与将加强PBRN研究。
PURPOSE We wanted to describe community-based participatory research in practice-based research networks in the United States.METHODS We surveyed all identified practice-based research networks (PBRNs) in the United States to find out whether they had a mechanism for obtaining feedback or involvement from the community of patients served by PBRN physicians. We asked open-ended questions on how they involve community members and whether they had plans for future involvement of community members and/or patients.RESULTS We received 46 completed questionnaires (71% response rate). Twenty-four reported that they have some mechanism to involve community members and/or patients in their research. No PBRN reported full participatory methods; however, several PBRNs reported active involvement by community members to generate research ideas, review research protocols, interpret results, and disseminate findings.CONCLUSION While perhaps not meeting the classical definition of CBPR, some PBRNs are involving community members and patients in their research. There is a wide spectrum of involvement by community members in PBRN research. Many PBRNs reported plans to involve community members in their research. We believe that community involvement will enhance PBRN research.