Caring for a stroke patient: The burden and experiences of primary caregivers in Uganda - A qualitative study
Caring for a stroke patient: The burden and experiences of primary caregivers in Uganda - A qualitative study
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DOI：
10.1002/nop2.356
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发表时间：
2019-10-01
期刊：
影响因子：
2.3
通讯作者：
Seeley, Janet
中科院分区：
文献类型：
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作者：
Gertrude, Namale;Kawuma, Rachel;Seeley, Janet
目的：我们评估了乌干达坎帕拉照顾中风患者的护理人员的负担和经验。我们在2018年5月至2018年7月期间对脑卒中患者的主要护理人员进行了定性横断面研究。方法主要照护者被定义为在至少4个月的时间里为卒中患者提供日常照护的人。采用有目的抽样，连续招募主要护理人员。进行了深入的采访，录音，并提出了意见。使用NVIVO 12.0按照主题方法对数据进行管理。结果共纳入25名护理人员，平均年龄39.3岁，标准差10.7。从对护理人员照顾中风患者的经验的定性分析中确定了四个主题：承担新的责任，保护护理人员免于崩溃的因素，有限的资源和患者结果的经验。我们的研究结果强调需要采取干预措施来支持中风患者及其护理人员。
Aim We assessed the burden and experiences of caregivers looking after stroke patients in Kampala, Uganda. Design We conducted a qualitative cross-sectional study between May 2018-July 2018 among primary caregivers of stroke patients. Methods The primary caregiver was defined as the person spending most of the time providing daily care for the stroke patient for at least four months. Purposive sampling was used to consecutively recruit the primary caregivers. In-depth interviews were conducted, and audiotape recorded, and observations were also made. Data were managed using NVIVO 12.0 following thematic approach. Results Twenty-five caregivers were included in the analysis with a mean age of 39.3, SD 10.7. Four themes were identified from the qualitative analysis on caregivers' experiences of looking after stroke patients: taking on new responsibilities, factors that protected caregivers from breaking down, limited resources and experiences with patient outcomes. Our findings highlight the need for interventions to support stroke patients and their caregivers.