Living a 'normal' life: young people coping with thalassaemia major or sickle cell disorder
Living a 'normal' life: young people coping with thalassaemia major or sickle cell disorder
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DOI：
10.1016/s0277-9536(00)00364-6
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发表时间：
2001-09-01
影响因子：
5.4
通讯作者：
Ahmad, WIU
中科院分区：
文献类型：
--
作者：
Atkin, K;Ahmad, WIU
这份定性文件探讨了年轻人用于科普镰状细胞病或地中海贫血的战略和资源，这两种血红蛋白疾病对健康和生存有严重影响。通过关注应对策略，我们探索年轻人如何试图控制自己的生活。受访者大多来自南亚和非洲加勒比海地区，年龄在10岁至19岁之间，他们重视维持“正常生活”，并努力实现这种正常生活。策略，以尽量减少与同龄人的差异，但这些策略仍然脆弱。应对发生在一个动态的空间，涉及与个人和结构因素的谈判和参与。对正常生活的威胁并不总是存在于这种情况中;生活的转变、社会关系的变化以及种族主义、残疾人或性别歧视者的边缘化也威胁到应对策略。(C)2001爱思唯尔科技有限公司版权所有。
This qualitative paper explores the strategies and resources young people use to cope with sickle cell disorder or thalassaemia major, two haemoglobin disorders with serious implications for health and survival. By focusing on coping strategies, we explore how young people attempt to take control over their lives. The respondents, largely of South Asian and African Caribbean origin, aged between 10 and 19 years, valued maintaining a 'normal life and struggled to achieve this normalcy. Strategies were employed to minimise difference from peers but these strategies remained vulnerable. Coping occurred in a dynamic space, involving negotiation and engagement with both personal and structural factors. Threats to normalcy did not always reside in the condition; life transitions, changes in social relationships and racist, disablist or sexist marginalisation also threatened coping strategies. (C) 2001 Elsevier Science Ltd. All rights reserved.