African American Men's and Women's Perceptions of Clinical Trials Research: Focusing on Prostate Cancer among a High-Risk Population in the South
African American Men's and Women's Perceptions of Clinical Trials Research: Focusing on Prostate Cancer among a High-Risk Population in the South
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DOI：
10.1353/hpu.2013.0187
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发表时间：
2013-11-01
影响因子：
1.4
通讯作者：
Hebert, James R.
中科院分区：
文献类型：
--
作者：
Owens, Otis L.;Jackson, Dawnyea D.;Hebert, James R.
虽然非洲裔美国人患某些癌症的风险明显较高，但他们参与癌症研究的比例也很低，特别是临床试验。本研究评估了非裔美国男性和非裔美国女性（1）对癌症相关临床研究的了解和参与，以及（2）参与临床研究的障碍和动机。共收集了81名参与者的数据。本研究的第一阶段包括定性焦点小组（所有81名参与者）。第二阶段包括定量前/后的调查数据，从教育计划（56名参与者）。研究结果显示，非裔美国男性和女性对临床试验和知情同意程序的了解很少，参与临床试验的经验有限，他们害怕和不信任癌症研究。参与者确定了激励措施，安全性保证，知识和意识，以及使他人受益作为参与临床试验研究的动机。
While African Americans are at a significantly higher risk for developing certain cancers, they also have low rates of participation in cancer research, particularly clinical trials. This study assessed both African American men's and African American women's (1) knowledge of and participation in cancer-related clinical research and (2) barriers to and motivations for participating in clinical research. Data were collected from a total of 81 participants. Phase I of this research consisted of qualitative focus groups (all 81 participants). Phase II included quantitative pre/post survey data from an education program (56 participants). Findings from the study revealed that African American men and women had poor knowledge about clinical trials and the informed consent process, limited experience in participating in clinical trials, and they feared and mistrusted cancer research. Participants identified incentives, assurance of safety, knowledge and awareness, and benefiting others as motivators to participate in clinical trials research.