Linkage of maternity hospital episode statistics birth records to birth registration and notification records for births in England 2005-2006: quality assurance of linkage.

Linkage of maternity hospital episode statistics birth records to birth registration and notification records for births in England 2005-2006: quality assurance of linkage.
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DOI:
10.1136/bmjopen-2020-037885
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发表时间:
2020-10-26
期刊:
影响因子:
2.9
通讯作者:
Quigley M
Quigley M
中科院分区:
医学3区
文献类型:
--
作者:
Coathup V;Macfarlane A;Quigley M

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本研究的目的是描述用于评估婴儿出生登记记录和医院出生记录之间联系质量的方法,并评估这些方法可能引入的潜在偏差。来自国家统计局 (ONS) 先前链接的民事登记和出生通知的数据已进一步链接到英国出生婴儿的医院事件统计 (HES) 的出生记录。我们开发了一种确定性的六阶段算法来评估这种联系的质量。 2005 年 1 月 1 日至 2006 年 12 月 31 日期间,英格兰国家卫生服务医院发生了所有 1 170 790 例活产单胎分娩。主要结果是 ONS 出生记录与 HES 出生记录之间成功链接的数量。计算该队列的成功连接率,并确定与不成功连接相关的特征。大约 92% (1 074 572) 的出生登记记录成功与 HES 出生记录关联。与关联的出生登记和出生通知记录相比,HES 出生记录的数据质量和完整性稍差。质量保证算法识别出 1456 个不正确的链接 (<1%)。与关联数据集相比,如果婴儿是白人,出生记录更有可能不关联;未婚母亲所生;出生于东英格兰、伦敦、英格兰西北部或西米德兰兹;或三月出生。可以将管理数据集链接起来以创建大型队列,从而使研究人员能够探索有关暴露和儿童结局的重要问题。数据缺失、编码错误和不一致意味着在分析之前评估链接的质量非常重要。
The objectives of this study were to describe the methods used to assess the quality of linkage between records of babies’ birth registration and hospital birth records, and to evaluate the potential bias that may be introduced because of these methods. Data from the civil registration and the notification of births previously linked by the Office for National Statistics (ONS) had been further linked to birth records from the Hospital Episode Statistics (HES) for babies born in England. We developed a deterministic, six-stage algorithm to assess the quality of this linkage. All 1 170 790 live, singleton births, occurring in National Health Service hospitals in England between 1 January 2005 and 31 December 2006. The primary outcome was the number of successful links between ONS birth records and HES birth records. Rates of successful linkage were calculated for the cohort and the characteristics associated with unsuccessful linkage were identified. Approximately 92% (1 074 572) of the birth registration records were successfully linked with a HES birth record. Data quality and completeness were somewhat poorer in HES birth records compared with linked birth registration and birth notification records. The quality assurance algorithms identified 1456 incorrect linkages (<1%). Compared with the linked dataset, birth records were more likely to be unlinked if babies were of white ethnic origin; born to unmarried mothers; born in East England, London, North West England or the West Midlands; or born in March. It is possible to link administrative datasets to create large cohorts, allowing researchers to explore important questions about exposures and childhood outcomes. Missing data, coding errors and inconsistencies mean it is important that the quality of linkage is assessed prior to analysis.
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