Facebook Experiences of Users With Traumatic Brain Injury: A Think-Aloud Study.
Facebook Experiences of Users With Traumatic Brain Injury: A Think-Aloud Study.
复制标题
DOI：
10.2196/39984
复制
发表时间：
2022-12-16
影响因子：
--
通讯作者：
Turkstra, Lyn
中科院分区：
文献类型：
--
作者：
Ahmadi, Reihaneh;Lim, Hajin;Mutlu, Bilge;Duff, Melissa;Toma, Catalina;Turkstra, Lyn
我们对社交媒体知识的一个关键差距是，我们是否可以减轻创伤性脑损伤（TBI）患者的访问障碍和挑战，以改善他们的社会参与和健康。为此，我们需要有关这些障碍和挑战的实时信息，以设计适当的辅助措施。这项研究的目的是描述 TBI 患者访问和使用社交媒体网站的方式，并了解他们面临的独特挑战。我们邀请 8 名患有中度至重度 TBI 的成年人登录他们自己的 Facebook 页面，并像平常一样使用它，同时大声思考。他们的评论被记录并转录以进行定性分析。我们首先使用基于 Meshi 等人提出的框架的先验编码来分析参与者的话语，以对成年人访问社交媒体的动机进行分类。接下来，我们使用开放编码方法来了解 TBI 患者在使用 Facebook 时面临的挑战。换句话说，我们分析了参与者使用 Facebook 的需求，然后确定了使他们难以满足这些需求的 Facebook 功能。参与者使用了 Meshi 等人框架中的所有类别的代码，并提供了有关 Facebook 用户界面的详细反馈。先验编码揭示了参与者使用 Facebook 的两个维度：他们在 Facebook 上发帖和自我披露是主动还是被动，以及他们使用 Facebook 的熟悉程度和流畅程度。开放编码分析揭示了 TBI 参与者报告的 6 种挑战，包括语言生成和解释困难、注意力和信息超载、消极情绪和情绪传染的认知、使用 Facebook 的指导不足、对基于网络的诈骗和欺诈的担忧以及一般可访问性问题。结果显示，患有 TBI 的人使用 Facebook 的原因与典型成年人相同，这表明 Facebook 有助于增加社交沟通，减少孤立感和孤独感。参与者还发现了障碍，我们建议进行修改，以改善脑损伤患者的使用机会。根据已确定的功能和挑战，我们最后提出了社交媒体支持工具的设计思路，这些工具可以促进患有 TBI 的成年人更积极地使用社交媒体网站。
A critical gap in our knowledge about social media is whether we can alleviate accessibility barriers and challenges for individuals with traumatic brain injury (TBI), to improve their social participation and health. To do this, we need real-time information about these barriers and challenges, to design appropriate aids. The aim of this study was to characterize the ways people with TBI accessed and used social media websites and understand unique challenges they faced. We invited 8 adults with moderate to severe TBI to log onto their own Facebook page and use it as they regularly would while thinking aloud. Their comments were recorded and transcribed for qualitative analysis. We first analyzed participants’ utterances using a priori coding based on a framework proposed by Meshi et al to classify adults’ motives for accessing social media. We next used an open coding method to understand the challenges that people with TBI faced while using Facebook. In other words, we analyzed participants’ needs for using Facebook and then identified Facebook features that made it challenging for them to meet those needs. Participants used all categories of codes in the framework by Meshi et al and provided detailed feedback about the Facebook user interface. A priori coding revealed 2 dimensions that characterized participants’ Facebook use: whether they were active or passive about posting and self-disclosure on Facebook and their familiarity and fluency in using Facebook. The open coding analysis revealed 6 types of challenges reported by participants with TBI, including difficulty with language production and interpretation, attention and information overload, perceptions of negativity and emotional contagion, insufficient guidance to use Facebook, concerns about web-based scams and frauds, and general accessibility concerns. Results showed that individuals with TBI used Facebook for the same reasons typical adults do, suggesting that it can help increase social communication and reduce isolation and loneliness. Participants also identified barriers, and we propose modifications that could improve access for individuals with brain injury. On the basis of identified functions and challenges, we conclude by proposing design ideas for social media support tools that can promote more active use of social media sites by adults with TBI.