The Better Understanding and Recognition of the Disconnects, Experiences, and Needs of Patients with Chronic Idiopathic Constipation (BURDEN-CIC) Study: Results of an Online Questionnaire
The Better Understanding and Recognition of the Disconnects, Experiences, and Needs of Patients with Chronic Idiopathic Constipation (BURDEN-CIC) Study: Results of an Online Questionnaire
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DOI：
10.1007/s12325-017-0633-5
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发表时间：
2017-12-01
影响因子：
3.8
通讯作者：
Quigley, Eamonn M. M.
中科院分区：
文献类型：
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作者：
Harris, Lucinda A.;Horn, John;Quigley, Eamonn M. M.
简介：比较慢性特发性便秘（CIC）患者与治疗CIC患者的医疗保健专业人员（HCP）的经验和态度的文献有限。进行BURDEN-CIC研究是为了更好地了解CIC患者的经历和持续需求，并评估其与治疗CIC patient.Methods的HCP的看法和需求的一致性与断开性：BURDEN-CIC研究是作者开发的在线问卷，使用KnowledgePanel（R）调查CIC患者（n = 1223）。分别招募治疗CIC患者的HCP，并参与补充在线问卷调查（n = 331）。结果：大多数患者使用（58%）或正在使用（51%）非处方药治疗CIC，目前只有16%的处方药治疗。超过一半（59%）的当前CIC处方使用者对其当前的慢性治疗不满意/完全满意。许多患者（42%）对他们的CIC感到沮丧，类似比例（40%）表示接受CIC是他们日常生活的一部分。大多数HCP认为CIC患者对当前的治疗选择感到沮丧（72%）、压力（50%）或厌倦（43%），但相对不知道（21%）患者正在接受他们的CIC。HCP报告了治疗CIC患者的最大挑战，包括对当前治疗的应答率（55%）、治疗依从性（55%）、治疗相关腹泻的管理（34%）和缺乏治疗选择（34%）。结论：BURDEN-CIC发现，由于缺乏疗效和副作用（如腹泻），许多患者和HCP对当前CIC治疗感到沮丧和不满意。调查发现，许多患者“接受”他们的疾病，可能会影响治疗结果。HCP和CIC患者之间需要更多的对话，特别是关于治疗预期和副作用的管理。此外，额外的治疗选择对患者和HCP都有用。
Introduction: There is limited literature comparing the experiences and attitudes of patients with chronic idiopathic constipation (CIC) to those of healthcare professionals (HCPs) treating CIC patients. The BURDEN-CIC study was conducted to better understand the experiences and ongoing needs of CIC patients and to assess their alignment versus disconnection with the perceptions and needs of HCPs who treat CIC patients.Methods: The BURDEN-CIC study was an author-developed, online questionnaire that used KnowledgePanel (R) to survey individuals with CIC (n = 1223). HCPs who treat CIC patients were recruited separately and participated in a complementary online questionnaire (n = 331).Results: Most patients had used (58%) or were using (51%) over-the-counter treatments for their CIC, with only 16% currently on prescription therapy. More than half (59%) of current CIC prescription users were not satisfied/completely satisfied with their current chronic treatment. Many patients (42%) felt frustrated regarding their CIC, and a similar percentage (40%) expressed acceptance that CIC was part of their daily life. The majority of HCPs agreed that CIC patients were frustrated (72%), stressed (50%), or fed up (43%) with current treatment options but were relatively unaware (21%) that patients were accepting of their CIC. HCPs reported the greatest challenges in treating CIC patients as response rates to current therapies (55%), treatment adherence (55%), management of treatment-related diarrhea (34%), and lack of treatment options (34%).Conclusion: BURDEN-CIC identified that many patients and HCPs are frustrated and not satisfied with current CIC treatments due to lack of efficacy and side effects, such as diarrhea. The survey identified that many patients are "accepting'' of their disease, potentially compromising treatment outcomes. More dialogue is needed between HCPs and CIC patients, especially regarding management of treatment expectations and side effects. Further, additional treatment options would be useful for both patients and HCPs.