Multidisciplinary approach to community engagement in global public health research.
Multidisciplinary approach to community engagement in global public health research.
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DOI：
10.12688/wellcomeopenres.19974.2
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发表时间：
2023
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最近，人们对社区参与知识生产和“直升机研究”等道德问题的作用重新产生了兴趣，这表明一些研究人员的剥削性研究活动以及与研究界的短期关系，特别是在低收入和中等收入国家。这种做法对两个社区和更大的科学界都是有害的，因为这可能会产生不信任。联合王国国家卫生和护理研究所等主要机构强调了社区参与的重要性，将其作为一种工具，通过纳入边缘化社区的声音和关切，改善研究的范围、质量和影响。同样，在其2022年指南中，美国人类遗传学学会（ASGH）强调需要通过社区参与解决基因组学研究中的代表性不足问题。建立道德和有意义的长期关系可能具有挑战性，特别是对于那些不是社区成员或来自其他国家的研究人员。本文介绍了如何“社区参与的研究”可以解决一些在不同的文化背景下，在全球公共卫生的伦理挑战。
Recently, there has been a renewed interest in the role of community engagement in knowledge production and ethical issues such as ‘helicopter research’, indicating exploitative research activities of some researchers as well as short-term relationships with research communities especially in low- and middle-income countries. This approach is detrimental to both communities and the larger scientific community as this may breed mistrust. Major institutions such as the National Institute of Health and Care Research in the United Kingdom have highlighted the importance of community engagement as a tool to improve the reach, quality, and impact of the research by incorporating the voices and concerns of marginalized communities. Similarly, in its 2022 guidance, the American Society for Human Genetics (ASGH) highlights the need to address underrepresentation in genomics research through community engagement. Establishing ethical and meaningful long-term relationships can be challenging especially for researchers who are not members of the community or those from other countries. This article describes how ‘community-engaged research’ can address some ethical challenges in global public health in different cultural settings.