Pragmatic randomised trial to evaluate the use of patient held records for the continuing care of patients with cancer
Pragmatic randomised trial to evaluate the use of patient held records for the continuing care of patients with cancer
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DOI：
10.1136/qhc.0100159
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发表时间：
2001-09-01
期刊：
影响因子：
--
通讯作者：
Malinovszky, K
中科院分区：
文献类型：
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作者：
Williams, JG;Cheung, WY;Malinovszky, K
评估社区癌症患者多学科记录的使用。设计-实用的随机对照试验。研究地点位于威尔士西南部的斯旺西，研究对象为斯旺西辛格尔顿医院肿瘤科治疗的501名患者，干预措施为患者和医护人员使用的记录，主要结果指标为生活质量，（EORTC QLQ-C30）在入组研究时和6个月时测量; 6个月时患者的观点;结果：1148名患者符合研究条件; 501名患者被招募（44%），344名患者完成研究（每组172名）。两组之间在生活质量或NHS资源使用方面的变化没有显着差异。病人持有的记录对沟通没有影响，但对病人准备预约有显著帮助，减少了监测自己进展的困难，并帮助他们感觉更有控制力（p
Objective-To evaluate the use of a multidisciplinary record held by patients with cancer in the community.Design-Pragmatic randomised controlled trial. Setting The environs of Swansea in south west Wales.Participants-501 patients under the care of the Department of Oncology, Singleton Hospital, Swansea.Intervention-A patient held record used by the patient and healthcare professionals.Main outcome measures-Health related quality of fife (EORTC QLQ-C30) measured at entry into the study and at 6 months; patients' views at 6 months; healthcare professionals' views collected after the completion of patient follow up; NHS resource and booklet use.Results-1148 patients were eligible for the study; 501 were recruited (44%) and 344 completed the study (172 in each group). There was no significant difference between the two groups in change in quality of life or NHS resource use. The patient held record did not have an impact on communication but was significantly helpful to patients in preparing for appointments, reducing difficulties in monitoring their own progress, and helping them to feel more in control (p