The Bereaved Parent Needs Assessment: a new instrument to assess the needs of parents whose children died in the pediatric intensive care unit*.
The Bereaved Parent Needs Assessment: a new instrument to assess the needs of parents whose children died in the pediatric intensive care unit*.
复制标题
DOI：
10.1097/ccm.0b013e31825fe164
复制
发表时间：
2012-11
影响因子：
8.8
通讯作者：
Thurston CS
中科院分区：
文献类型：
--
作者：
Meert KL;Templin TN;Michelson KN;Morrison WE;Hackbarth R;Custer JR;Schim SM;Briller SH;Thurston CS
评估丧亲父母需求评估的可靠性和有效性，这是一种新的工具，用于测量父母的需求和在儿童重症监护室死亡时的需求满足。我们假设需求满足与复杂的悲伤呈负相关，与丧亲期间的生活质量呈正相关。横截面调查。五家美国儿童医院的儿科重症监护室。父母（n = 121）6个月前在儿科重症监护室失去亲人。调查包括68项丧亲父母需求评估，复杂悲伤清单和世界卫生组织生活质量问卷的简化版本。每个丧亲父母需求评估项目描述了一个潜在的需求，并在两个量表上进行评级：1）5分的重要性评级（1 =根本不重要，5 =非常重要）和2）5分的满足评级（1 =根本没有满足，5 =完全满足）。计算了三个复合量表：1）总重要性（所有重要性评级≥4的需求的百分比），2）总满足度（所有满足度评级≥4的需求的百分比）和3）满足度百分比（满足的重要需求的百分比）。内部一致性信度采用Cronbach’s α和Spearman-Brown校正的分半信度。广义估计方程被用来检验复合量表与复杂悲伤量表和世界卫生组织生活质量问卷之间的预测。两个项目的平均重要性评分<3，55个项目的平均评分>4。综合评分的信度范围为0.92 ~ 0.94。完全满足感与复杂悲伤量表呈负相关（r =-0.29; p < .01），与世界卫生组织生活质量问卷呈正相关（r = 0.21; p < .05）。实现百分比也与这两个结果显著相关。调整父母的年龄，教育和独生子女的损失，实现百分比仍然与复杂悲伤清单显着相关，但与世界卫生组织的生活质量问卷无关。丧失亲人的父母需求评估证明了可靠性和有效性，以评估在儿科重症监护病房的父母丧失亲人的需求。在孩子去世前后满足父母的需求可能会促进对损失的调整。(Crit Care Med 2012; 40：3050-3057）
To evaluate the reliability and validity of the Bereaved Parent Needs Assessment, a new instrument to measure parents' needs and need fulfillment around the time of their child's death in the pediatric intensive care unit. We hypothesized that need fulfillment would be negatively related to complicated grief and positively related to quality of life during bereavement. Cross-sectional survey. Five U.S. children's hospital pediatric intensive care units. Parents (n = 121) bereaved in a pediatric intensive care unit 6 months earlier. Surveys included the 68-item Bereaved Parent Needs Assessment, the Inventory of Complicated Grief, and the abbreviated version of the World Health Organization Quality of Life questionnaire. each Bereaved Parent Needs Assessment item described a potential need and was rated on two scales: 1) a 5-point rating of importance (1 = not at all important, 5 = very important) and 2) a 5-point rating of fulfillment (1 = not at all met, 5 = completely met). Three composite scales were computed: 1) total importance (percentage of all needs rated ≥4 for importance), 2) total fulfillment (percentage of all needs rated ≥4 for fulfillment), and 3) percent fulfillment (percentage of important needs that were fulfilled). Internal consistency reliability was assessed by Cronbach's α and Spearman-Brown–corrected split-half reliability. Generalized estimating equations were used to test predictions between composite scales and the Inventory of Complicated Grief and World Health Organization Quality of Life questionnaire. Two items had mean importance ratings <3, and 55 had mean ratings >4. reliability of composite scores ranged from 0.92 to 0.94. Total fulfillment was negatively correlated with Inventory of Complicated Grief (r = −.29; p < .01) and positively correlated with World Health Organization Quality of Life questionnaire (r = .21; p < .05). Percent fulfillment was also significantly correlated with both outcomes. Adjusting for parent's age, education, and loss of an only child, percent fulfillment remained significantly correlated with Inventory of Complicated Grief but not with World Health Organization Quality of Life questionnaire. The Bereaved Parent Needs Assessment demonstrated reliability and validity to assess the needs of parents bereaved in the pediatric intensive care unit. Meeting parents' needs around the time of their child's death may promote adjustment to loss. (Crit Care Med 2012; 40:3050–3057)