Care and support needs of children and young people with cancer and their parents
Care and support needs of children and young people with cancer and their parents
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DOI：
10.1002/pon.1014
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发表时间：
2006-09-01
期刊：
影响因子：
3.6
通讯作者：
Sloper, Patricia
中科院分区：
文献类型：
--
作者：
Mitchell, Wendy;Clarke, Susan;Sloper, Patricia
癌症儿童及其家庭的心理支持服务的重要性是公认的，但这种服务的评价是欠发达，提供有关不同模式的信息很少。本文概述了英国儿童及其家庭在治疗期间和治疗后接受的心理社会支持。它报告了对303个家庭进行的一次邮寄调查的结果，在调查中，父母和子女确定了他们对支助服务的满意程度，以及未得到满足的需要。满意度在一系列领域，包括医疗信息和护士和社会工作者的支持。然而，也强调了未满足需求的领域，特别是适合年龄的设施、情感支持和不同形式的信息。虽然英国政府的政策目前寻求制定标准和准则或整个国家卫生服务的照顾，本文表明，仍然有必要发展心理社会支持服务和工作，对最近制定的准则，以确保家庭得到灵活，但公平的一揽子照顾和支持，无论在哪里接受治疗。版权所有（c）2005年约翰威利父子有限公司。
The importance of psychosocial support services for children with cancer and their families is recognised but evaluation of such services is less well developed with little information available about different patterns of provision. This paper provides an overview of psychosocial support children and their families in the UK receive during and after treatment. It reports the results of a postal survey of 303 families, within which parents and children identified their satisfaction with support services and also areas of unmet need. Satisfaction was identified in a range of areas, including medical information and support from nurses and social workers. However, areas of unmet need were also highlighted, especially age appropriate facilities, emotional support and information in different formats. Although British government policy currently seeks to develop standards and guidelines or care throughout the National Health Service, this paper demonstrates that there is still a need to develop psychosocial support services and work towards recently established guidelines in order to ensure that families receive flexible but equitable packages of care and support, wherever treatment is received. Copyright (c) 2005 John Wiley & Sons, Ltd.