The lived experience of spouses of patients with a left ventricular assist device before heart transplantation
The lived experience of spouses of patients with a left ventricular assist device before heart transplantation
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DOI：
10.4037/ajcc2005.14.2.145
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发表时间：
2005-03-01
影响因子：
2.7
通讯作者：
Casida, J
中科院分区：
文献类型：
--
作者：
Casida, J
目的探讨配偶在移植前作为左心室辅助装置患者指定照顾者的生活经历，并评估这种经历对他们的意义。方法这项现象学研究包括3名38至52岁的女性，她们在患者在家等待心脏移植时被指定为左心室辅助装置患者的照顾者。结果产生了三个主要主题：情绪困扰、决心和乐观：新的租约。通过负罪感和对疾病严重程度的认识、恐惧和焦虑、对照顾者是一种压倒性体验和负担的认识、应对、带着希望生活、实现爱的关系、适应新生活和快乐的感觉等8个主题来阐明确定的主题。这些阶段的特点是确定了主题和次主题，否则这些主题和次主题可能不会被披露或可能对研究参与者保密。重症监护护士应该认识到并预见到配偶作为照顾者所经历的这些生活阶段的挑战。提高对这一现象的认识将指导护士制定个性化的护理计划，教育患者和患者家属，并评估护理结果。(美国杂志QF危重护理。2005；14：145-151)。
BACKGROUND No publications describe the life experience of spouses who are designated caregivers of patients with a left ventricular assist device before transplantation.OBJECTIVE To explore what life is like for spouses serving as caregivers of patients with a left ventricular assist device before transplantation and to assess the meaning of such experience to them.METHODs This phenomenological study included 3 women 38 to 52 years old who were designated caregivers of patients with a lot ventricular assist device while the patients were waiting at home for a heart transplant.RESULTS Three major themes emerged-emotional distress, determination, and optimism: a new lease on lift. The identified themes were elucidated by 8 subthemes: guilt and realization of severity of illness, fear and anxiety, recognition that being a caregiver is an overwhelming experience and a burden, coping, living with hope, realization of loving relationship, adaptation to a new life, and joyful feeling.CONCLUSION The spouses who served as caregivers had strong emotions as they entered each stage of this lift experience. The stages were characterized by the identified themes and subthemes, which otherwise might not have been revealed or might have remained private to the study participants. Critical care nurses should recognize and anticipate challenges for these stages of life experienced by the spouses as caregivers. Heightened awareness of this phenomenon will guide nurses in individualizing plans of care, educating patients and patients' families, and evaluating outcomes of care. (American Journal qf Critical Care. 2005; 14: 145-151).